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Short version of visit - GI doc thinks sores may be staph or even MRSA - talking with ID colleagues on whether we should change topical antibiotics (we have been using mupirocin and bacitracin). He'd rather avoid oral. Thinks that maybe the additional steroid from the enemas gave the staph a...

Candi - I would say yes, with diffuse, moderate to severe disease, it takes awhile. It's awful that it is typical and yet a relief when you are looking for typical!!!! When Claire was dx, she was inpatient on IV steroids for a couple of weeks until the inflammation was reduced enough to be...

Momtotwo - Yes on the MRE. No on the northeast. And, we didn't have the movie goggles. :-) We are glad you've found us but sure hate that you are going through this. It's been several years for us but in some ways, it feels like last week! Big hug, Julie

So far - the doc and I are fine. ;). We've had moments of bilateral irritation though. Lol. I told him from the beginning we needed a partner and that I want to be able to tell him what we are thinking, Etc etc. But to answer your question YES sometimes we are our own worst enemies and the...

It is a good place for support. My girl is 11 too. 😝 Let us know how we can support you. J.

Dusty - Unrelated to supplements.....I think I need your autograph! :rof: Surely over 50000 views for your personal thread deserves an award! Love you. :ylol2: :congratualtions:

Carol! :-( :-( We've only had one bone density scan and it's been about 5 years ago, just a few months after dx. You make me think we need a new one! What's the plan????? J.

Dance Mom - I think it is a better guess. None of them are flesh colored. They do look almost underneath the skin until they start to erupt (for lack of a better word) and look so angry. The worst one she has right now shows no sign of stopping or draining. it's about the size of my pinky...

Sorry you have to be here but sure glad you found it......let us know how we can support you. Hugs, J.

The "common" stuff like a cold or a 24 hour stomach bug is hard not to freak out over but you'll find that when things get to a new normal - most kids don't have these more than any other kids. My "healthy" kid has had more upper respiratory infections than the immune suppressed one! Do...

Awesome!

Glad you are giving it a try - I hope the results are good. We are currently using it at short stints and it's been helpful. Keep us posted! :-) J.

Googled Crohn's Petechaie (sp?). So far.........that's the winner. ! J.

Okay Dance Mom - Anything's possible but they don't look quite right.

DanceMom - I'll have to look at some pictures of that one. Did your child's coincide with crohns' activity?

Made good on my promise today. The bags might be few but the spending was mighty. 👍👍👍

Catherine - That's a good question.... I don't think so..... Poor doc, yall better warn him to set aside some extra time. ;-)

blackli you are right! She's just super crazy hypersensitive after this last enemapalooza. Bless her heart. I suspect I'm going to have to talk her into it in the morning. The hospital where I work is expecting Joint Comission surveyors at any moment. I've been at work way too much this...

http://www.ncbi.nlm.nih.gov/pubmed/8406382 and I'm planning to get my hands on this at work! http://journals.lww.com/jpgn/Citation/publishahead/Hidradenitis_Suppurativa_And_Pediatric_Crohn_s.98505.aspx Since I've said (pasted) this stuff, that should guarantee that they will all be gone by...

I don't think it looks anything like a systemic JIA rash although if I've learned one thing, Farmwife, it's NEVER say NEVER. Tesscorm, she the most prolific outbreak of them at the time of diagnosis. I know she always has more when she's more symptomatic. I never really thought much of it...