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Might I ask what his objection was to AZA? J.

Couldn't hurt. We've used mupirocin and bacitracin on the dread SOUO (sores of unknown origin :-) my new abbreviation) with good luck. I hope you can get it cleared up!!! J.

Well the AZA takes a while (months) to be effective. Was he able to tolerate it log enough to know for sure whether or not it was going to work?

A second opinion is never a bad idea. We are in the middle of EN feeds through NG tube on an 11 year old and I'm thrilled that she's averaging about a pound a week weight gain. Now, her loss is nowhere near as dramatic as your son's but I, like you, would be pushing for solutions. Like...

Ditto on the other comments. Here's some general guidelines. http://www.cdc.gov/growthcharts/data/set1clinical/cj41l021.pdf A lot depends on genetic potential (how tall the parents are) and also how they've been trending over time.

Poor baby. Claire wears the 50 and a hat due to the MTX. She gets some come & go pink but no blistering. I'm so sorry!!! I'd call Derm too! J.

Our fecal cal's are covered. One insurance is covering the formula at a reduced rate but hubby's won't cover it unless you're a premature infant. Sigh..... All these crazy exclusions depend on the plan. Don't give up! J.

J (didn't mean to call you Emily :-)) - Claire would periodically vomit - with no warning, and no nausea until her disease was under control. It would freak her Dad and I out because she'd vomit, I'd clean it up and she'd finish dinner. Eek! It was just the disease. Not sure on the...

Everyone has said it WAY BETTER than I could. All that's left is :ghug: :ghug: :ghug: & let us know how it's going! J.

This was the ankle (and the girl) at noon today. Not the usual 😡. And no, that's not a bruise - it's redder and a little more mottled (for lack of a better word) than the stupid picture appears.

Maya142 - an ankle brace might be in order if this continues. School starts first week of August - had it been today, it would have been disastrous!

MLP - we did those things before. Probably could this time if it would stay in one joint more than 4-5 days. I have to get a new strategy in my head. I emailed her rheumatologist to ask him if we should expect more of this since we are weaning Uceris. I also asked if doing short pred burst...

MLP - she has heated mattress pad she uses at night. Tried heat on ankle this morning. She complained that the pressure of the pad was too painful. Lordy. Those things seem to work for us with the less acute onsets. I'm going to keep trying though. J.

Farmwife - right now it's her choice - I'd give it to her in a New York minute.

Haven't quit Meloxicam. Arthritis is worse. Damn it. Trying to talk her into the pred. Maya142 - she might need a peptalk from M. ;) J.

Crohn2357 - No new news (say that three times fast :rof:). We did the second loading dose at week 4 and it was uneventful. I can't really say what it is doing for GI tract since we are doing EN but we have starting weaning the Uceris. He says no MTX weaning until we are all the way off the...

Kim - I hate that. We've had joint pain with flares on occasion but MOST of the time, ours operates independently of what's going on with her gut. We need to find you a doc! Hugs, J.

Patricia said it so, so well. We want you to have a healthy, happy boy who can hopefully avoid some of what our kids have been through. That is why most (of course, not all) docs want to be aggressive. Your doc may be taking cues from you so asking the questions Patricia suggested is good, in...

I wouldn't like 9.4 either. :(

MLP - I haven't worried much about the lidocaine. We have to get through one more loading dose (the big one) and then it will only be every 8 weeks. I'm figuring with everything else she's tolerated - a 10 sec (at the most) burn every 2 months will seem like child's play. Seems sad, right???? J.