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Congratulations, and thanks for sharing!

Hang in there. The first 6 months is the hardest, since most maintenance meds for Crohn's take a while to work. It's great that you noticed improvement after the first dose of Remicade, but it can take a while for significant healing of the intestines. I agree with the above advice that your son...

My daughter has had her share of minor infections while on biologics + mtx. About twice a year, a regular cold turns into a sinus infection, ear infection, or bronchitis. Usually a short course of antibiotics takes care of it. She rarely has a fever with the infection, due to her suppressed...

As the new year begins, I just wanted to let new readers know that there are co-pay assistance programs for most biologics. If you have private insurance, the programs are independent of your income. We have good insurance for the most part, but our co-pay for infused drugs is 20%, which means...

Once E turned 13, she was able to get her infusions at an adult outpatient infusion center. The only restriction was that she could only go on weekdays, when there were pediatricians on site. (The infusion center was at a regular health clinic.) Now that H is 10, maybe you could get permission...

So sorry, CIC. Hope you all recover quickly.

Fingers crossed she doesn't have Covid. Let us know. And yes, we are all so done with 2020!

So sorry to hear that both kids are flaring. And yeah, it seems like there's something about Nov/Dec that seems to lead to flares here too. Are your kids having symptoms, or just high calprotectin?

My 18 year old daughter is another who's done great on remicade. She's been on it and methotrexate since diagnosis 6 years ago. She was really sick when diagnosed, so it took about 6 months (and some other treatments like EEN and budesonide) until she really started doing well. But at that point...

My daughter has been on Remicade for 6 years, along with methotrexate. For her, the combo works well. When we've tried Remicade by itself, it doesn't work as well as when she's on both. Methotrexate makes her a little nauseated and tired the next day. Our GI doesn't typically use 6mp.

Yes, my daughter also couldn't use formulas with inulin. At the time, the one that gave her problems was Peptamen Jr 1.5, but looking at the ingredient list now, I don't see inulin in it any more. She ended up on regular Peptamen 1.5, but it sounds like you might be better with a fully elemental...

Glad that recovery is going well!

Oh my gosh--so sorry to hear this, sgholmes. I will be thinking of him and you and hoping that he has a very mild case with a quick recovery. (And of course it all had to happen on a holiday weekend--ugh!)

My daughter was started off with the Remicade/methotrexate combo, to try to stop antibodies from forming in the first place. After a year, her doctor took her off methotrexate to see if she could get by without it. She went into a flare, so we put her back on the methotrexate, and she got...

Sorry to hear about your son's resection, Pangolin. I hope the surgery goes well. I don't have any advice, but here's some past threads that might help: https://crohnsforum.com/threads/surgery-suggestions-for-hospital-stay.80743/...

yikes!

E just cancelled her housing contract. OSU has moved almost all fall classes to be online, but as of now they are still planning to allow students to live in the dorms if they want to. With online classes and all the social distancing rules, E decided it just didn't sound very fun to be on...

I agree with MLP--check with the groups she suggested. The guidelines may have changed since E used a tube.

OK--I've been thinking about this more, and I'm pretty sure that we also got just 5 ng-tubes a month, even when E was only using them at night, because they could be reused for a week. Does this sound familiar to anyone else? I think we rinsed it well after use, put it in the fridge, and then...

Good for T! That's awesome that she could insert the tube on her own so quickly. You could probably get more tubes free (except for shipping costs) through the Oley Foundation, if insurance doesn't approve more. We offered a bunch for donation when E finished her EEN, and no one ever requested...