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  1. X

    Little Pilgrim has Opinions

    I asked someone who did research in MRI physics and this person said that they use different "pulse sequences" to look at fat or nerves or bone and thought that an MRI of the spine would be quite different from an MRI of the gut. I found a 2020 article (attached) which says "In conclusion...
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    Little Pilgrim has Opinions

    I think it could be ok to see a chiropractor if they only examine her and don't do any manipulations. You'd have to be in the room to make sure. An MRI is a good idea. Sending lots of 🤗🤗🤗 and well wishes.
  3. X

    Little Pilgrim has Opinions

    If she has this much discomfort, can she see her GP sooner for a sick visit? The two weeks and see plan might work in someone who can take NSAIDS but she can't so she needs a new plan. There's a limit to the amount of Tylenol one can safely take. She had difficulty getting out of bed, but once...
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    Little Pilgrim has Opinions

    So sorry you and she are dealing with this on top of everything else. Forgive me if you already answered these questions. Where is the back pain? Midline? Or to the side? Lower, mid or upper back? How large an area is it? Is it over her vertebrae? What makes it better or worse? Is she having...
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    Lymphocytosis / high lymphocytes count on Remicade / Infliximab ??

    I just googled and learned about "active monitoring" without treatment for some early lymphoma. I had never heard of that before. Is that what your doctor is doing? I asked about Crohn's medicine because some of them have increased risk of malignancy and could be contraindicated in people who...
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    Lymphocytosis / high lymphocytes count on Remicade / Infliximab ??

    Chronsbusters, I'm sorry to hear about your lymphoma diagnosis. Have you begun treatment for lymphoma? Did the oncologist mention any concerns about the medications you are taking for Crohn's?
  7. X

    Heard from Doc today

    Patrick appears to have had a hematopoietic stem cell transplant in which they give chemotherapy to kill off your bone marrow and replace it with stem cells that create new bloods cells ( red, white, platelets). Apparently it changes your immune system such that crohns can be cured. However...
  8. X

    Heard from Doc today

    I'm glad she recovered well and really hope she gets at least a few weeks of improvement from the steroid injection. I'm wondering if the doctor(s) talked to her about postponing the colectomy and trying experimental treatments. I can't imagine how it would feel to have it in your mind that...
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    Heard from Doc today

    How is she feeling? Did she get any relief from the injection?
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    Covid vaccine antibodies PREVENT TRIAL

    Is there a control group of healthy children?
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    New study vaccine and immunosuppressants

    I agree it's a good vaccine and I think everyone should get vaccinated (except rare medical reasons not to).
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    New study vaccine and immunosuppressants

    The booster was a month ago so I can’t attribute this breakthrough case to waning antibody levels. It was a home test but he now has a pending PCR test. The info on the home test says very very few false positives. There are many false negatives.
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    New study vaccine and immunosuppressants

    My son had a positive home COVID-19 test this morning after 3 doses of Moderna; he only takes a normal dose of Inflectra for Crohn's. He previously had an antibody test done locally which showed a normal level of antibodies with the caveat that they couldn't say that he was immune.
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    CRP Level

    Just wanted to add that ESR 8 and 7 are really the same.
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    CRP Level

    CRP can increase with upper respiratory infections. If the CRP elevation persists (when repeated in a few weeks), you can probably attribute it to gi inflammation. If it comes down, the elevation may have been due to his cold. CRP go up and down faster than ESR. Every test has some degree of...
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    Candida after surgery

    Sometimes doctors may give an oral anti fungal medication. Is he/ was he on antibiotics?
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    Questions to ask GI

    Good luck!
  18. X

    Heard from Doc today

    Glad she looks good and feels good! I will preface the rest by saying that I don't know a lot about these medicines while her GI is an expert and has a lot of experience and knowledge. It's true that really malnourished people don't heal well but I agree with you that it's not clear that...
  19. X

    Heard from Doc today

    Her GI "feels strongly that her low BMI was keeping the drugs from being able to work well " Did he mention the mechanism for this? (I'm curious.) What weight/BMI does he think she needs to be for the drugs to work? I believe she's on Humira and Entyvio --- forgive me if I'm wrong! When did...
  20. X

    Heard from Doc today

    These are the questions I have for GI, ped surgeon and your daughter: What needs to be done to get her in the best condition for surgery? Should she be on EEN? I know it didn't solve her problem but if it helped some, might it be worth doing it before surgery? How will GI/surgeon judge if...
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