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Crohn's Disease Forum

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  1. Dahlia

    Undiagnosed Club Support Group

    Cat - I’m really sorry to hear about your job. What a rotten way to repay 15 years of loyalty. I hope things start looking up soon. Izzie - I’m glad to hear your date is scheduled. I hope the anxiety improves. Its really great to think it might be able to make your symptoms much better...
  2. Dahlia

    Undiagnosed Club Support Group

    Izzie - is the food list on the Crohn's forum at all helpful? I dont have Crohn's but when I was having problems after a GI infection, that list was a lifesaver. It matched what I could tolerate much better than anything else I found, including low fodmap or low fiber. I lived off fish congee...
  3. Dahlia

    Undiagnosed Club Support Group

    Miss leopard, I’m sorry to hear you are dropping weight so quickly. One thing I read about, and experienced, is that sometimes doctors won’t take overweight patients as seriously but they should. Losing x% of your weight is serious no matter where you started, you are still at nutritional...
  4. Dahlia

    Undiagnosed Club Support Group

    Sally, I can’t sit well either bc of my back. Sitting is the hardest thing on my back and it gets worse as time goes on. I lay on the floor in a doctors office if needed. If they have a bench, great I will lay on that, but if not then the floor it is. Izzie - I hope they give you...
  5. Dahlia

    Undiagnosed Club Support Group

    ChronicallyAwesome - I hope you get answers soon. I think (hope!) that if there is something they see that means you should get immediate medical care that they would call you. AKgirl - I had an abdominal ultrasound when I first had severe abdominal pain early in the year. They measured all...
  6. Dahlia

    Undiagnosed Club Support Group

    Chronically awesome - that's great that it's scheduled, but I'm sorry you are having back pain problems too. What you are describing sounds really unpleasant. I'm glad your rheumatologist is so supportive. They sound great.
  7. Dahlia

    Undiagnosed Club Support Group

    A lot better now. It hurts if I press, but basically ok otherwise. Not so crazy tired either and low grade fever is gone. Bug running through the house so I couldn't tell if feeling tired went with the pain, or I was just getting a cold. Should be ok now, as long as it doesn't cause any...
  8. Dahlia

    Undiagnosed Club Support Group

    Just wanted to update quickly to say the abdominal pain is slowly improving. It felt kind of like the way things started out at the beginning of the year. Keeping an eye out to see if I get the another round of digestive craziness. Hopefully not :). I think I may be up for trying some normal...
  9. Dahlia

    Undiagnosed Club Support Group

    Thanks for the advice! Don't have prescriptions but I took peppermint oil which is antispasmodic (much milder, I'm sure) and a medicine for gas. Using the heating pad too. It isn't helping yet but maybe it will after a while. We have a cold running through the house so I feel crummy, but I...
  10. Dahlia

    Undiagnosed Club Support Group

    Chronically Awesome - sorry to hear about the receptionist, but glad you were able to get through to your rheumy. That's great the tests are already ordered. I hope the GI can see you soon. Miss Leopard - my test was like that too. One egg, 2 pieces of white bread, jam, water. The bread and...
  11. Dahlia

    Undiagnosed Club Support Group

    I hope the recovery is the easiest one, too. Best wishes.
  12. Dahlia

    Undiagnosed Club Support Group

    I just caught up, too. I'm sorry to hear about your surgery miss leopard but I hope it helps. Wishing everyone well. Lots of updates and it seems like there has been some good progress as well as some setbacks. I messed up and must not have checked when I was sent an email, and I just thought...
  13. Dahlia

    Undiagnosed Club Support Group

    Hi Angie, welcome. I think even your normal doctor can order a stool sample, and they should do it if you tell them how weird things are and ask for one, so that your colon specialist has the results when you go next month. I would definitely ask for one! I'm sorry the first doctor you saw...
  14. Dahlia

    Undiagnosed Club Support Group

    Miss leopard- I am not on any meds. By eating differently and adding liquid meals, I was able to get my calories up so weight loss is slow enough that it's ok at this point. Relegan is the drug that my GI mentioned, but both of us thought I was ok just managing how I eat for now. By the time...
  15. Dahlia

    Undiagnosed Club Support Group

    I hope the new appointment helps, miss leopard. I went ahead and started the gastroparesis dietary advice on my own and it helped me. It was nice to have something I could do to make things better than I could control. I can tell you what I do if that would help. i hope the appointment goes...
  16. Dahlia

    Undiagnosed Club Support Group

    Sarah - I'm so sorry that things are so difficult right now. I was really hoping the feeds were going well and would help a lot. Kittykat - I hope the pain and anemia management can help you feel better. Chronic pain is rough. I had my last GI appointment. They confirmed that the diagnosis...
  17. Dahlia

    Undiagnosed Club Support Group

    Sarah - Thank you for the advice. Actually, reading your posts was what made me read up on it and made me realize gastroparesis could explain the symptoms that didn't fit with post-infectious IBS (loss of appetite, unintentional weight loss, only being able to eat small amounts at once) - it...
  18. Dahlia

    Undiagnosed Club Support Group

    When I first saw a GI they ordered a colonoscopy first without other tests so I guess it doesn't seem too weird to me, but that's just me :) They ordered different tests the next time I went, including stool samples. They didn't order any blood work but my normal doctor had ordered some blood...
  19. Dahlia

    Undiagnosed Club Support Group

    I'm a bit confused by the people coming in here just to criticize. I've found this forum to be really helpful when trying to figure out what is wrong and to get support. Sometimes when things go wrong, it is really clear to the doctors what is wrong and how to help. Sometimes it isn't...
  20. Dahlia

    Undiagnosed Club Support Group

    I hope you are OK, kittykat. One nice thing about nurse hotlines is that they will tell you things like call an ambulance and then your parents can't be annoyed, because you were doing what the nurse said to do. The nurses are pretty good at figuring out if you need to go to the ER or if it...
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