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Glad EJ's scope came out well. EJ sounds like my Tanner, after a scope he wants major food none of that start with liquids and see how that goes crap!LOL As for Methotrexate, if you have to go that route I hope it goes well for you. I personally will never put Tanner on that again, it put him...

Well archery went well but he is still weak that will improve though. He is getting back to hisself and like you said AZMOM it just makes me smile. He was out and about all day Saturday playing with his friends, means the world to me! He had his follow up yesterday at Cincy and he has gained...

I have so wanted to just blow up on people who say stupid things but have held it in. It made me feel so good when I read that you just let it fly Dustykat. When I do blow though and I am sure I will, Lord help the person who is getting it!LOL I totally get what you mean about their loss of...

THanks Dexky, chrisnsteph1022 and Shake-n-Jake. Things(knock on wood) seem to be improving some for Tanner. Bathroom trips seem to be slowing down, maybe it just took a little more time and patience is not one of my strong points! Having people who truly understand what Tanner and I go thru...

Mr. Ziggy I read your thread about the stem cell transplant! So interested in that and I keep asking about it but his docs say there just isn't enough research yet and none for kids. I am praying though. Tanner is a tough kid and I have never heard him say why me. But 5 years of no relief is...

Thank you Mario. I try to hold all my anger and frustration in and be strong in front of everyone but some days you just have to let it out. Thank God for wonderful people like you and others on this site.

Just having one of those days I just want to sit and cry. I don't have Crohn's but my 11yr old son does. Going on 5yrs now since diagnosed, no meds have put him into remission or helped for long. Had an ilieostomy and in December had all but 12 inches of his colon removed and the ilieostomy...

I was searching this site to see if anyone else has had chest pain. My son who is 11 started complaining of bad chest this past Friday, of course after his visit with his GI doc and the surgeon. Tanner did take protonix for several years but after his last scopes and before his surgery his doc...

Tanner is allergic to the adhesive on the bags. Tried several different types and for the whole yr with the bag his skin under the bag was just raw and sore. But we did the ilieostomy with the hopes that with nothing going thru it and trying another med it would rest and heal. That did not...

Thanks CDdad. Tanner had an ilieostomy before this surgery and it did not help his colon heal so it had to come out. Tanner does not have a pouch now they just connected his small intestine to the 10 to 12 inches left of his colon, which still had active Crohn's but mild not severe like the...

I am wondering the same thing as you how many weeks???? How long???? My 11yr old son had all of his colon removed except for maybe 10 to 12 inches and then the small intestine connected to that on December 9, 2010. Well it is Jan 11 and he is still going to the bathroom alot 6 to 7 times and...

DEXKY yes Tanner will be having his surgery at Cincinnati Children's Hospital. I just love it there, at least I have comfort knowing he is in the best hands

Hello Starfish 7!!! I have an 11 yr old son with Crohn's disease. Tanner was diagnosed with Crohns at the age of 7 and thru the years we have tried it all. Now he is facing surgery in December to remove his colon. And on top of that I think he is really stressed about it and causing his...

well Tanner's docs met with him and talked to him about the surgery and told him what to expect. We are hoping to have surgery scheduled for December 9th if not then it will probably be after the first of the year and Tanner just wants it done and over with. Still trying to take all of this in...

Thank you all so much. I talked to his doc yesterday and surgery may be happening first part of December. Soon I know and Tanner is asking more and more questions. Praying this is the beginning of a new pain free year.

DustyKat Praying for you and your son...

hurting for my son So we just found out on Monday after a series of scopes that my son will be having his colon(most if not all) removed soon. They also found a stricture that even with changing scopes they couldn't get past. I am trying to see the upside to this like his ilieostomy will be...

I think these are feelings and thoughts all parents who have children with Crohn's experience. I cry at least once a day and fight against crying most of time. It is so hard to sit back and watch your child suffer knowing there isn't a thing you can do. We just got news this week that I had...

We took my son to Hershey Medical to be in a trial they were doing with LDN and children with crohn's. Unfortunately it did not help my son but they were reporting that is had helped some of the children who had finished the trial.

Hello!!! I know exactly how you feel, but hang in there. My son is 11 and was diagnosed with Crohn's at 7. We have done just about all of the meds out there. Pred is tough and I can only imagine tougher for a girl. My son was teased and picked on, luckily he would talk to me, so just keep...