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My son is diagnosed with Crohn's disease couple of years ago and we are planning to go to India soon for a month long vacation. He developed antibodies for Remicade and that is out from the list. He's currently on entocort (6mg). We are planning to take him on 3mg entocort. Once. .we are back...

Thank you

Thanks a lot for your responses. My father in law has non pulmonary tb, so the risk is very less. Non pulmonary tb isn't contagious. Maya142: May I ask to which part of India you go to? Sorry. .if it's too personal. We would be staying in Karnataka. I'm really confused as to what we should...

We will start the Humira.., but we are planning to go to India soon. So, I want to start Humira, once we are back from India. We are leaving on the first week of Feb and return back in a month.

We are planning for a month long vacation to India in February 2017. It's my only brother in law's wedding and my in-laws want us to be there. My son is currently taking budesonide ( was on Remicade earlier this year, which failed.., so we had to stop it). He's doing so much better with...

Thanks a lot for all your valuable comments. We decided not to try Remicade again. Remicade is out from out list now :( Meantime, I told my son's doctor to hold Humira for a while as I was due with my second kid. I wanted my son to try Budesonide. Our doctor was not in favor for it, but decided...

Our doctor has accepted my request and he has decided to try the Remicade one more time. But..after seeing your responses, I'm scared to death. Our nurse called up today and told me, he can get the infusion in the main hospital (not the infusion center) and he will be admitted over night for...

Thanks a lot for all your inputs. We met the doctor and asked him to give Remicade a try one last time. Our doctor wanted to switch t Humira. I suggested the doctor to administer my DS 10mg/kg of Remicade at 6 weeks and keep him under observation for 24 hours. If my DS feels good, only then I...

He has flushing and tightness of cheeks.

My son's Remicade antibody level is 100 and the doctor is suggesting us to switch to Humira. His Remicade level is also Zero. He's been having infusion reactions. I would like to know how high were your antibodies before changing the medications. I don't want to lose Remicade so easily. He's...

Even my son complains of leg pain after infusion. His pain is behind the knees and says he cannot stand straight. However, 24 to 36 hours after infusion...the pain goes away. He gets flushed too for the first 48 hours of infusion. The doctor did check for antibodies and found he has developed...

MLP, May I know what kind of reaction did your son have with Remicade. My son has reacted during his 3rd, 4th and 6th infusion. His reaction was flushed eyes, cheeks and ears. The reaction happens within the first 5 minutes of his remicade. They stopped the infusion for about 15 mins and...

My son also gets flushed cheeks and ears regularly. However, he never had any before he had GI problems. When his symptoms started, he started getting flushed cheeks. He still gets them. However, he isn't in remission yet. During Remicade infusions too, he has got flushed face (reaction to...

Any idea how long he has to be off Remicade? I'm really hoping that its not too long...fingers crossed. We couldn't meet our GI yesterday as the appointment got canceled. The doctor was sick. I really can't wait to get the answers from the GI... Do you guys have any suggestions for mono?

Hi! What calcium supplements are you giving your kids? My son is 9 and 1/2 years old now. Also..suggestions on digestive enzymes please...

Hope you get your answers soon.

My son''s health became worse over the weekend and we took him to the PCP again. Now, the PCP is saying he's having mononucleosis. Its caused by the herpes virus. Since the swelling is bad, they want to put my son on a 5 day course of prednisone. There is no treatment for the virus. They say...

Update: After his C diff was treated, his liver enzymes came back to normal. May be.., the cdiff elevated his liver numbers.... Still waiting for his remission...it's been more than a year :(

Hi I'm back with a list of concerns. You might see my original post here Things are not going great with my son. He was diagnosed exactly an year ago on the same day. We are still nowhere near to remission.... We started remicade last october (2015). After his first two loading doses, he...

Hi! I'm back. But, things are not so great here yet. My son has his second set of blood work done in the second week of November (15th Nov). Again, his liver numbers were elevated (about 120 range is what my doc told). Now, our GI wanted us to meet the hepatologist just to keep an eye on the...