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We are right there with you! My little guy Rollin (he is 3.5 too) has what looks to me to be geographic tongue at times, with canker sores at other times. And his mouth can hurt so much. The docs don't understand what it is like to have such a little person feel awful. My guy has his own term...

Thank so much for your replies. Rollin had an endoscopy done at 15 months. The only thing it showed then was the low pancreatic enzyme levels (they did a stimulation test to find that). Rollin is still nursing too. Its the one reliable, nutritious "food" he will take consistantly. Our current...

Has anyone heard of Exocrine Pancreatic Insufficency (meaning your pancreas fails to make digestive enzymes) as a part of Crohn's? My 3 yr old son is undiagnosed, but was found to be pancreatic insufficent when he was a little over a year old. They thought his failure to thrive was related, and...

Comforting to hear of other families Hi! Thank you for starting this thread. My 3 year old son is undiagnosed, but Crohn's is next on the list to be ruled out. We have seen a ton of docs and a couple didn't even put Crohn's on the table of possibilities. I hate to subject my son to more...

Hi! My son has recurrent episodes of severe vomiting and diarrhea (5 bouts in 9 months with 2 hospitalizations; and one paralytic ileus). His problems started when he began to eat solid foods. He was very picky and wouldn't eat much of anything except breastmilk despite being hungry. By the time...