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A few weeks on now - and I thought I'd update this thread in case anyone else is researching this medication. Ranger was checked by a neurologist who assured us that his odd hand movements are not in any way related to the meds. More of a behavioral tic that he should grow out of. He came...

Beth - thanks for your comments. It's always good to hear an adult's experience of this kind of thing - trying to figure out the significance and connections of symptoms in a six year old can be hard!

Mark, yes, I've spoken with the GI and he's arranged a consultation with a neurologist, so I'm guessing that some sort of neurological side affect isn't unheard of. Plus this week he's having blood tests - once the tests are all in we'll meet with the GI for a full review. It's a little...

Yes - it'd be wildly unfair if the one thing that's actually worked for him is causing these problems!

Hi. My 6 year old son has been on methotrexate injections for 7 months. At first we saw no benefits or side affects. A month ago however the Crohn's symptoms started to ease, and he now seems to have gone into remission for the first time EVER. He's eating really well and even growing. But...

My son always has an Emla patch on for an hour or so before the injection - so the actual needle going in doesn't hurt. But the medication itself stings once it goes in. Some days it seems to hurt more or last longer than others - probably to do with the location of the injection, but we...

Hi. My six year old son is on Methotrexate at the moment and nothing else other than a restricted diet. He's been on it for nearly six months. No bad side affects, but he is very well monitored on it. (Weekly blood tests for the first month, tapering off to once every six weeks now). He...

Hi Mark. As you know, but others probably don't, we're from Christchurch, New Zealand, and have just had a devastating earthquake. Which has kind of put Crohn's into perspective in the short term. Our son may be pooping constantly, but at least he's alive! Actually we live a little out of...

Hello. My son has had Crohn's since birth, so we went through the whole toilet training issue with him. We took it very slowly - in fact he was four when we started. By this time he had great language and fully understood what was expected. In fact, after seeing his peers at pre-school using...

It's not easy on the Mum's is it - and people don't appreciate the added stresses - sometimes my six year old can be up four times a night to use the toilet, and that means I'm up to assist him. And then there's all the doctors appointments, and the travel time. And if there's a school trip I...

Thanks for the continued advice. The filler definitely wasn't lactose, and our son's diet is lactose free. But the filler wasn't acidophilious either, so I should look into it further. Our son has now started on methotrexate injections, plus just coming off six weeks of elemetal diet. As...

Hi Scott. I'm really sorry to hear that things aren't going so well. It's so difficult and frustrating. Symptoms seem to be different for everyone, and there are so many different medications etc - it's really hard as a parent to know what to do. My son is also five. But he was diagnosed at...

Hi Mark. No more foot pains thankfully - we'll have to see if it reoccurs after his next injection. He does have a great sense of humor about it all - perhaps because he was diagnosed so young and has no sense of embarrassment regards it. He often gets wind when he's physically active -...

I just thought I'd share this moment we had with our five year old son today. He was sitting at the table drawing his own ‘maze.’ When showing it to us he points to a stick figure in one corner and says "this is me, and you have to get me to the toilet by the quickest way." Then he points to...

Hi Mark. I have emailed Ranger's doctor - he's usually pretty good at getting back to us - but it is the weekend here unfortunately. I did find some info online about leg cramps experienced by people taking Metho for arthritis - but since the dose and delivery is probably different it's hard...

methotrexate and leg pains Sorry - accidentally posted this twice and don't know how to delete. See previous post...

Hi Jamie. Just catching up with this thread. Our five year old tried LDN recently for about 4 months. We had a few moments that looked hopeful, but his crohn's is quite severe and the LDN just didn't seem to be able to hold back the flares. Unfortunately we had to come off the LDN and start...

methotrexate and leg pains Hello. My five year old son had his first methotrexate injection on Friday. All seemed fine, until the second night, when he woke up twice with extreme pain in his foot. Lasted 30 mins and had him screaming. Some kind of muscle or nerve pain?? (Hard to interpret...

This is great to hear. Congratulations. I'm also curious as to what other treatments, diets, supplements you're using. Also how bad were you when you started the LDN?

Interested to hear from any New Zealanders who have tried Helminth Therapy - hook worms, whip worms etc?? Not even sure if it's legal here. And in general keen to hear of anyones experiences, good or bad, with this therapy.