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Crohn's Disease Forum

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  1. P

    How do we cope with this

    Hi una i'm in monaghan, No unfortunatly una she doesn't open up very much, but once she can do all the things she likes, she's happy. its mainly when she's feeling unwell she tends to talk,its better than nothing. Sometimes when we meet other children with crohn's she will talk about how hard a...
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    How do we cope with this

    Hi Una, so sorry your little girl has got this horrible disease, my daughter got the very same diagnosis 3 years ago she was almost 13, she also has it from mouth right through to anus, i'm not going to say its been easy on her, she' had a rough 3 years, but she started infliximab in june and is...
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    Attention parents of kids with ulcerative colitis

    Hi Anna, My daughter has crohn's and is on inflixmab she bruises very easily just the slightest touch. During a flare she gets very painful bruising on her lower legs, this is called Erythema nodosum, hope this helps.
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