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I had to quit Prednisone unitl I could get muscle reliant to calm my side effect of painful tightening on my neck and back. I felt more awful than ever because prednisone replaces cortisol, an essential hormone. I felt like I had the flu without a fever, it was awful. So taper down, and let your...

On December 28, went to the hospital as instructed by a nurse. I was vomiting the night before and much into that day. I got an IV and with CRP of 103, that should have been below 10. The doc has a father and brother with Crohn's and wanted to admit me, but due to that hospital receiving a lot...

Hello, I'm a Foodie too. I cook when I feel good enough, making delectables for my dad and friend that live with and for my great neighbors that support and care about us. In the hospital, I food programs, planning a party to celebrate intestinal fortitude, which I have yet to achieve. But I...

Johnny, Thank you. I finally got a great GI doctor who is part of the team my support doctor is on. I know now, I should have stood up to the fool doctor and walk out, since my life nearly ended due to his complacency and ignorance. Yes, my dog is awesome. When she was only 4 months old, my mom...

6 Rounds of C-Diff, begging for an FTM, fecal transplant, 85% effective. One doctor was ready to refer me to get one. Then he left. His replacement telling me, "Not right now" or, "Your are not healthy enough," or "There is a rouge bacteria loose." All of it bunk and just putting me off, since...

Sense of humor, yes so important. I'm 53, diagnosed October 2017, and life is no BC, before Crohn's and AF, after Crohn's. Lost my brother suddenly last March and his final lesson to me out of many he taught me all out lives, is to take care of myself, so I can take care fo others. He helped so...

First of all, thank you, I am an adult and ultimately I have to make my own choices, and blind faith in anything is dangerous. 3 out of 5 of my docs want me passively at home, waiting for Entivio. But now that I'm in Washington State and using an aloe product that has the healing elements and...

It’s been a rough week few weeks. On June 7th I was sitting with my friend watching something great on TV and my hands started itch, shortly after I finished a Red Popsicle. It was the compromise for sweet cravings exacerbated greatly by steroids, both Prednisone and Budesonide that I use to...

Hello, I recently started using Aloe Select and Xtra from a company called Univera. I'm feeling better, my stools are now fully solid for the first time in a very long time. My afternoon crashes where I was getting weak and dizzy and would sleep for two hours are nearly gone. I don't need to...

Nadia, Another option might be a fecal transplant. I'm getting one due to reoccurring C-Diff, I'm not sure how much it would help, but ask your GI. I'm also taking a concentrated aloe drink and since, my intestines are better off than they have been since diagnosis in 10/16. I'm also tapering...

Thank you Spooky, Having a good day today. I cautiously hope this turn around is going to lead to remission. Next week I will receive an aloe tincture from Univera, it's concentrated to only the healing compounds. A good friend of mine and her and her grandmother that she lives with both are...

C-Diff and My Roller Coaster Ride Hello, I just got out of the hospital two weeks ago and I'm still on the antibiotic budesonide because it was my fourth round with C-Diff since last October. Seven more days in the hospital and I'm working with an Infectious Disease doctor. The last 16 months...

I go to a suport group led by a progressive doctor Who told us just last meeting that they are experimenting with combining Biologics and for example in Entivio takes a while to work because it actually worked prevents the replacement soldiers in the battle where Humira and Remicade block he...

Update: The doctor I was sent to by Social Security I saw today and he is actually a psychiatrist. I had no idea what I was getting into. I thought it was a medical review. When I applied the guy who took my application at the Social Security office has Crohn's and because of the anger issues...

Update: The doctor I was sent to by Social Security I saw today and he is actually a psychiatrist. I had no idea what I was getting into. I thought it was a medical review. When I applied the guy who took my application at the Social Security office has Crohn's and because of the anger issues...

Thank you. Stupid idiots in America so scared of socialized medicine and sold out by greedy money mongers that the great start of Obamacare is stalled like a scooter going over a mountain pass in winter. As Winston Churchill said, “America always does the right thing after trying. everything else.”

I'm nervous as Hell. I want to work again but can't. So I surrendered to apply for disability after 9 monh. I hired a lawyer who will charge 25% of my initial payment and work through any appeals. It's been three months since I applied. The lawyer now handles the paperwork. I am waiting to be...

Home Again, With great care from the hospital and the powerful antibiotic Vancomycin. I went to my GP today as per discharge orders and keeping my word made with a Nurse. I thought that it was a waste of time. But keeping all my providers up to date. And of course double checking my health is a...

Cmack, Thank you. I should be released tomorrow as long as I continue to improve. I ate eggs and cream of wheat, not finishing either. I exploded 30 minutes later. The nurse told me that is typical for the first solid meal. The antibiotic I'm getting is working and I'm past the contagious...

I got antibiotics after getting two teeth pulled and it woke UP the C--Diff cells we all have to aggresiv propagate and take over inflaming my intestines. Went to ER on Sunjday with sever diarrhea that grew to green and got darker and darker until black. After the test came back, everybody...