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The good nurse Tracy who understood everything and will be in tomorrow to give me a new 2.5 mg Prescription and a new round of blood work. I’m pretty wiped out today. I ended up going back on 10 mg of Prednisone to settle myself down afyer the awful withdrawal symptoms. I did my Humira shot...

No Luck with my GI doctor's office yesterday. Left a message with the wrong person for my doc. I thought I explained I needed a lower dose to taper down. When I got a call hack from said incompetent person, I was told they would not increase my dosage by 5 mg. It was the end of the day, doctors...

I’ve been on Humira and Imuran for 6 weeks and it’s working, hence I tapered off the steroid. Prednisone teplaves Cortisol helps you regulate your blood pressure, heart rate, and response to stress. After being on it for over three months, my body has to learn how to make cortisol again. I’m not...

The doctor had me on 20 mg pills and I was taking for three weeks at a time but when I crashed offf of Remicade and switch to Humira an 8 week process, I went on 60 mg and when Humira started to work, I went 40 mg for one week. 20 mg the next week then to 0 mg, which was awful. My support...

Thank you cmack. My big fingers and shaking hands can't break a half of a pill in half. I'm calling my HI doc to get 5 mg pills to ease the drop. I'm crashing with non-solid BM, fevers nausea and feeling like Hell. I'm keeping the faith.

Just when I thought I was on the road to remission, I've crashed for the 5th time. Since all was well I tappered off Prednisone, 60 mg, 40 mg, 20 mg, 10 mg and my last dose last Sunday. The last three days I've gotten progressively worse. Now I'm running fevers and loosey goosey, as mom used to...

I take B12 sublingual, under my tounge and it goes right to my bloodstream. I hold it there for 30 seconds and swallow. Maybe you can get your D vitamin that way.

I was on 60 mg, then 40, then 20. I went to 0 and I was miserable. The doctor in my support group said that was too drastic of a drop-off. I called my GI office and they said to cut the 20 mg pills in half, which stabilized me. Yesterday I went cold turkey again and it's still a shock to my...

Lynda, You are truly an amazing person. You've inspired me many times with your thoughtful insight. It's funny, here In Colorado, people are complaining about 90's. Your strength to take care of yourself when others aren't around is the saving grace that we all need.

Marley' s Mom, I started B12, Iron and D3 and they do wonders. My blood oxygen was low due to my hemoglobin at 65%. My nutritionist advised me to do the B12 sublingual, liquid under the tongue. it was amazing and my hemoglobin got up to 85% at the last blood test. I felt a lot better. I stuck...

Wwong, I just applied for disability in Colorado. It takes 3 months to process and varies state by state. It's a Federal programs, but administered at the state level. There is a lot of fraud, which means you have to submit paperwork with zero errors. I take antidepressants for the massive...

My nutritionist and three doctors, suggested B12 and D3. That would be my GP, GI and the doctor that leads my support group said they are the happy vitamins for Crohn’s. With my ileum imgalmed, where these vitamins are not being absorbed, I use liquid under my tongue, called sublingual. B12...

Lynda, Here in the US, children are now getting the non stinging shots. So hopefully, since It’s good enough fot kids, then adults should get it soon. QUOTE=lgpcarter;1009446]Joined this thread again on my 2nd go-around with Humira. Starting again on a higher dose (not sure what dose until it...

Great to hear you all seem to be on the right track. Humari is working for me and many others in my support group.

Your doctor should know, as my doctor and the doctor that leads my support group that it is very difficult to overdose B vitamins as they will be expelled in urine. If you drink enough water there will be no damage, More importantly is Crohn’s people need extra B12 and D3 vitamins because we do...

Yes, I learn from this forum, my support group, my GI docs, my nutritionist, the Internet and books. The MicroBiome Solution by Robynne Churkam is where I learned about the Biome. There are 10 times as many cells in the biome in the large intestines than anywhere else in the body. Good...

The non stinging Humira will take longer to roll out in the US, partially due to being the largest market in the World and also due to the strict rules of the FDA. Abbvie the manufacturer has got the US patent extended from 2016 to 2023, to block the other companies who developed lower cost...

Linda, I was put on Imuram while I was waiting for my Humira to start. My GI doc said they often do the combo therapy. I am now tapering off Prednisone, which I’m thrilled about ending all the side effects. I’m slowly but surely improving. I did stay up too late last night finishing my 16th...

The website and instructions say if the liquid is clear than it's okay. The routine my infusion nurse showed me has me check in the little window for clear liquid before I inject. If other liquid items in the same part of the fridge are not freezing, you should be good to go as long as you let...

Good News, It's working, in my 5th week, Humira and Imuran have solidified and somewhat regulated my caboose' s output. I'm still feeling exhausted due to 3 nightly bathroom visits, down from 4 and daytime down to 3 or 4 down from 5 to 8. I am cautiously optimistic, since the last three times...