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Crohn's Disease Forum

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  1. R

    Rectal disease options and cleanliness

    When it comes to that area, I think I have all of the above. It's progressively got worse. It started with one fissure which led to a skin tag and that process just repeated itself. In the early stages I used to bleed a lot, enough to turn the water in the toilet bowl red and enough to soak the...
  2. R

    Men Only - Cold body parts when using the bathroom?

    Nope. Sorry. I often get a numb left leg though!
  3. R

    Has this disease changed your sex life?

    Doubt I could have sex at all with things as they are at the moment. Which sucks as a 20 year old guy...
  4. R

    Gay/Lesbian/Bisexual/Transgender & Straight Allies Support Group

    @Ki3 Me either. I actually believe your doctor, especially in this day and age should take your sexual orientation into consideration. Lewis :D
  5. R

    Rectal disease options and cleanliness

    Not sure if this topic has ever come up :shifty:. If your back passage and the surrounding area is affected by your condition in some way or another whether that be hemorrhoids, skin tags, fissures etc. would your GI consider having that repaired through surgery or would they just recommend its...
  6. R

    Undiagnosed Club Support Group

    Tiny update - Got a letter today to tell me that I'm on and outpatients waiting list to go see a colorectal specialist, which I find interesting since colorectal surgery is a field that deals with the lower bowel, although the ever so accurate Wikipedia does say that they deal with those that...
  7. R

    Crohn's Disease and nasal sores

    Strangely enough I always have a bloody nose and it's constantly congested. It's weird how all these small symptoms like mouth ulcers and this all may be caused by IBD. I sometimes think I'm falling apart with the amount of small symptoms I have that I wouldn't think were related.
  8. R

    Undiagnosed Club Support Group

    Had a really calm week in terms of pain and D, but today it has returned with a vengeance. Can IBD symptoms be on and off or for most of you are they constant? I can have good days and then a really terrible one after that. Which is really annoying me because when I feel OK, I start questioning...
  9. R

    Undiagnosed Club Support Group

    Oh! Those sound really good. Like, I paid £13.00 for my last prescription, which is okay, but I know I'm likely to be put on all sorts of other medication if I do get diagnosed. Thanks :smile: On the application, do I select the yearly £104 option and then I assume I'll be given an option on...
  10. R

    Undiagnosed Club Support Group

    If my pain hadn't eased off I probably would have. I don't blame you. You could have been saved a lot of agony if they had taken action sooner, not to mention damage that could have been done by the time you were diagnosed. Hopefully the narrowing isn't permanent, I'd imagine its just the...
  11. R

    Undiagnosed Club Support Group

    Thanks gemling. I was worried that might happen because yesterday the pain was beyond anything I have ever experienced. I was seconds from telling my parents to call for an ambulance or something, but I waited it out. We shouldn't have to wait as long as we do. You go to your GP, have to wait...
  12. R

    Undiagnosed Club Support Group

    Forgot to update here! The tests surprisingly didn't come back clear, which I truly didn't expect after reading the posts here. He first went through everything that was functioning okay and told me I didn't have coeliac disease. Then, he told me I was anemic and had high inflammatory markers...
  13. R

    Hello! Yet to be diagnosed newbie...

    The ultrasound is for the inflammation and really to just find out why I'm in such excruciating pain. The anemia is secondary to it all really.
  14. R

    Hello! Yet to be diagnosed newbie...

    Wasn't sure whether to make a new thread or not, so I just though I'd post my little update here. Got my results back today. I'm anemic and have raised inflammatory markers (and something to do with proteins). Not coeliac and my liver, kidneys etc. are all fine. Given some medication for my...
  15. R

    Flare up...what to eat??

    Weirdly, my body almost tells me what to eat. I can look at something and thing 'that won't sit well in my stomach'. Like if my parents are cooking a Sunday roast or something, I'll leave things out like cabbage and anything gassy. Sometimes my stomach will start to hurt more just contemplating...
  16. R

    Undiagnosed, do you think I have an IBD?

    This seems to be the case all over the forum. Blood tests - inconclusive. So what's the point in them? I'm going for my blood tests on Monday and results on Friday. No doubt they will come back clear from what I've seen here. Really hope you get a diagnosis. Blood is NOT normal like other...
  17. R

    Undiagnosed Club Support Group

    *waves* So it's nighttime here in the UK. A dreaded time for me, as my undiagnosed 'problem' tends to flare up like crazy. I sometimes lie here in the fetal position, gripping my stomach and wait until it passes. I can feel it coming (5/10 pain) but I know as soon as I shut my eyes, it will get...
  18. R

    What's your theory on how you got Crohn's Disease?

    Partly stress/anxiety related, but I do believe excessive smoking and drinking at a young age (neither of which I do now) have also contributed. I also used to stay up all night without eating and then sleep most of the day. So I had an empty stomach a lot of the time. At school I always used...
  19. R

    Hello! Yet to be diagnosed newbie...

    Hopefully the bloods are just an initial measure. He did say it's a starting point. I'm such an inpatient person though, not knowing makes me obsess over it. :ymad: Off-topic, but I just wanted to add to my 'intro' that my symptoms are worse at night, when I lie down the pain just seems to kick...
  20. R

    Hello! Yet to be diagnosed newbie...

    Well, at least if I get a diagnosis I can possibly shed a light on their issues too. They are the type of people that refuse to go to a doctor. Well, my dad did, but was told to eat more fibre. :thumbdown: The doctor I had said those symptoms should never be ignored and not investigated.
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