Search results

Hi Floss: In the past I have simply stopped taking the drug once I reached 5mg in the taper. However, your idea to take your time reducing from there makes sense, provided your medical team knows you are taking it alongside the infliximab (just so everyone is in the know). Your pharmacist is one...

Yeah, you're so right: it's a bizarre enough thing to have happen that I definitely feel better knowing I am not alone. Mine happened to me in the fall, before my first surgery, BUT at that surgery they found a ton of adhesions that had previously developed from the Crohn's disease itself. So...

I had this happen once or twice in the fall during a flare and have no idea what it was! Felt awful for a few seconds and then it was gone.

That’s a fair question. The answer from the literature (I’m away from my laptop but I think I have the references somewhere) is that what gets labelled a placebo effect is more likely just one small part genuine placebo effect (belief) and one huge part regression to the mean (passage of time)...

No, not a single one! I am clearly bad at deciding when something is an emergency, but I do monitor my symptoms and there was nothing at all. I do hope you are taking your time thinking about the risks and benefits of surgery, though. And remember that meeting with a surgeon does not mean you...

Appreciate the well wishes. It’s a bit up & down, but more up than down in the last couple of weeks and I have been able to do some socializing and a LOT of walking (although, disclosure, today sucks—feels like active Crohn’s all over again :rolleyes:). I’m going to ease back into work starting...

Hiya: I’m sorry you are going through the wringer. Yes to the chance of a domino effect, but it sounds like the risk:benefit ratio favours that over the risks from living with the scarring and bowel dilation. You may be at increased risk of a blockage (ask me how I know 😬), especially with your...

Rebecca, this is a couple of months late but I remember you from those years and I was also active back then, drifted, now checking in again on the boards. I’m sorry to learn of your MS diagnosis and now Crohn’s flare-up; it must get to be a LOT. Take good care!

Hiya: I haven’t been in the forum for years but (1) hi, and (2) I /did/ have an ileocolic resection in January. What surprised me was the amount of damage that was found but also that the healing time is still roughly on schedule anyway. Between the CT scan showing fibrotic stricturing with no...

Cool! Thanks for sharing.

Hi Dusty and Irene: Thanks for the warm hello, Dusty! Irene, delighted to hear that you are tolerating vegetables despite the stricture. Re. breakfast, I'll have watery oatmeal, or two eggs with cheese or avocado, unsweetened Greek yogurt (maybe add some pure maple syrup....oh well!), or...

Hi J: One of my two fistulas is re-developing an abscess right now (bummer) and feels like you describe -- a hard pimple just under the skin. I only know mine is an abscess because of past experience; else, it wouldn't be as clear-cut. Take good care!

Hiya: I am reading this post with interest as my current goal is to stick to a low sugar diet (Dusty -- /1/ hi!!! and /2/ not sugar-free, or at least not yet, but perhaps working toward that goal). I am working with a nutritionist from my GP's practice as it appears I may have somehow managed...

Hi: Afraid I can't offer advice but I am sorry you are going through this. Am confident that people will have good answers for you soon. Entchen

That's so SMART!!!!! Fingers crossed it works for you, and remind me to do same the next time my iron's low, ok? :)

This is a concern!!!! Hope it's resolved soon.

Thanks for sharing!

Boo, sorry you are suffering (and sorry to have been away for a while again). xo

It's been an hour but I hope you are still resting. So sorry about the overload of tests. :rosette2:

No to hijack the thread, but SailorL I want to thank you for clarifying the abscess/fistula issue! Much appreciated. @Hurla, good news re. progress and I hope you can get things well in hand soon.