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Crohn's Disease Forum

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  1. Entchen

    Who is involved in research?

    This would get around some issues -- I know that I'd be happy to run some analyses if requested (quantitative only as qualitative takes forever!) -- but I do respectfully suggest that this idea of collecting data and presenting results to the forum is very different from the question about...
  2. Entchen

    Who is involved in research?

    Well, you could address consent issues by: 1. Using existing information posted on the site rather than asking new questions (it's public info, so you wouldn't need consent). 2. Setting up that external site to handle consent + data collection (some committees accept clicking an "I consent"...
  3. Entchen

    Coming Out

    Go Cool Auntie! No advice or information, just sending support to you. You'll make the decision that works for you.
  4. Entchen

    Who is involved in research?

    Thanks for asking! Personally, I haven't tried and wouldn't try because the use of this particular sample would never get past the Ethics committee for my area of research, and even if I set up an external site that people would be directed to (to start to address those concerns), the resulting...
  5. Entchen

    CHALLENGE: Take a walk each day

    ps: Selfish me hasn't kept up with the other posts. Jessi, best of success to your husband! He is very brave for moving on to his next career phase after dealing with significant injury. Way to go! And you sound like a wonderful encourager.
  6. Entchen

    CHALLENGE: Take a walk each day

    So I haven't been walking. (Sorry.) I've been overcome with awful arm, wrist, foot, and leg pains and stiffness, and now some numbness has set in, too (mostly in the wrist). Takes a lot to get me to stay on the couch, but it hurt too much to pick up a water glass with my right hand a couple of...
  7. Entchen

    Crohn's and NAFLD?!?! What...?!?

    Oh boo, Cornfield, that stinks. So very sorry that you're going through this additional challenge (and not a challenge that you needed!). Re. your question, I do have a fatty liver (it can be associated with Crohn's, I think?) but it is not at a stage where it would need any treatment.
  8. Entchen

    Tips for better supporting people with IBD

    Just be my friend. Be yourself. I'll keep up as best as I can.
  9. Entchen

    Advice/support from those that have been through it

    Hi Neighbour: Welcome to the forum. Sorry you might have Crohn's! Can't comment on price of Asacol, sorry, but if you do not have 100% drug coverage you might want to look into Alberta Health's Non-Group insurance plan, which is administered through Blue Cross. About $70/month and you'll never...
  10. Entchen

    Competition: Who has had the most blood drawn at one time?

    Gold star to Cindy for that.
  11. Entchen

    CHALLENGE: Take a walk each day

    I've been walking! Just spending too much time on computer lately and not really commenting on here to try to balance things out. But I have been taking advantage of the last days of summer to be outside walking and visiting with friends (and, you know, shopping). We have had a chilly few...
  12. Entchen

    Belly fat

    Crabbers filled in everything I had to say. :) But I do also have more belly fat now (not from Humira, but from steroids. And maybe aging.) and have been trying to do core exercises to help me be better able to suck it in lol, and up the cardio as well.
  13. Entchen

    Found a job ... in the nick of time

    Yahoo!!!! Congratulations to you! It takes a high level of skill to land a job these days.
  14. Entchen

    Methotrexate here we go...

    Hiya: Is it good news about the surgery, or are you concerned about it? I will send an extra dose of positive thoughts while you get this all worked out. Maybe you will see a clear improvement in quality of life afterward; I know that the reflux has been such a burden for you. Re. the...
  15. Entchen

    How do you deal with this AND everything else in life?

    Yes, good grief, you've hit the nail on the head. If you want to be treated like a malingerer, all you've got to do is be a female with a tummy ache. AFTER the Crohn's diagnosis, I went to a walk-in doctor (my GI was out of town). I reported that one or twice each hour I would have pain that...
  16. Entchen

    Anxiety vs. Depression

    Hi Michele: All anxiety is not routed through depression. Anxiety and depression show themselves differently in the brain (both are difficult to map in the brain because there is no one "anxiety area" and "depression area," but they do tend to involve different patterns of activity in...
  17. Entchen

    Ameslouise in hospital

    Amy, I am So Relieved to hear that the obstruction has passed...what a terrible experience that must have been. Keep on feeling better.
  18. Entchen

    I feel awful

    Oh poor Steph. That's the pits. I'm with you re. the multi-stalls. I used to throw up 5, 6, 10 times daily at work at it was awful. So much easier to manage at home where you have privacy, cold cloths, and so on, but that doesn't reflect reality for you so just take it a few minutes at a time...
  19. Entchen

    Methotrexate here we go...

    Hiya: Sending many, many good vibes, for job and heart both. Would you and hubby move if you took this new position, or would you be able to commute from your home with the lovely garden? I turned in final grades for my summer course today and will start 4 (!) courses in September. Happily, 3...
  20. Entchen

    CHALLENGE: Take a walk each day

    Goldfish, how pretty! And, thank you for the feedback! I really wasn't sure if this is something medical staff see as something that "just happens" or not, because the phlebotomist seemed so completely unconcerned. I made sure it was cleaned, yuck. Have been advised to call in a complaint if...
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