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Around here we encourage our son to do sailing in the summer as a form of PT for his arthritis. It involves lots of stretching of his back and all the tying of knots is good for his hands. An added bonus is that our son finds being on the water calming/rejuvenating and that helps with his...

I have been quiet on hear lately so I thought I'd give a brief update. Things are looking GREAT for my son. He has felt well for about 10 months now. We have eased off on following the FODMAP diet and he is still doing well. He went to summer camp for 2 weeks this summer and only had one...

Fantastic news!!! Way to go M!!!

DS found the tube a bit bothersome for the first couple of nights. But his throat seemed to get used to it and the nose didn't get sore when he got good at inserting it, which happened VERY quickly. I really think that it will be gentler for her to do the inserting herself because then she...

My son did EEN via a NG tube that he inserted himself nightly for 6 weeks. He was 10 years old at the time. Our lovely GI nurses taught him how to insert the tube in about 1 hour. I was totally amazed. He used a 6 Fr sized tube with the guide wire removed. He used a numbing gel (the kind...

So sorry to hear that your son has been diagnose with this disease. My son is also 13 and was diagnosed when he was 10 years old. When my son was diagnosed he had stopped growing and lost a tremendous amount of weight. It took a while to get him back on track but I am happy to say that he is...

DS tried Iberogast for several months. I don't think it did anything for him but it certainly did no harm either. He hated the taste of it which caused some strife at meal times. I recently gave a unused bottle to a coworker to try. I'll have to find out what he thinks of it. It is worth a try.

I've essentially heard this too. It is all part of the overlapping terms. I once asked a Rheumatologist if getting the diagnosis nailed down mattered and he said it did not as they treat the disease as it presents. The HLA B27 test will not likely clear things up. You are more likely to have...

FWIW in a bid to get my son more active I signed him up for sailing lessons last year. I may have created a monster because he LOVES it and it has become his sport of choice. It seems to be good in terms of getting him to stretch his back and move around a lot but not in a high impact sort of...

So sorry you have to join this club as well. I hope the Mtx does the trick. I have tried to get Rheumatology to be more definitive in their diagnosis in regards to the spondyloarthropathies but I think it is a very grey and over lapping area. It doesn't help my scientific brain that likes...

Excellent news! Glad to hear things are good.

This made me laugh. 23 Places You Absolutely Must Poop Before You Die http://news.distractify.com/culture/arts/17-places-you-absolutely-must-poop-before-you-die/?v=1

We have unilateral hip pain around here. The pain actually refers down the front of his thigh (near the top) but originates from the SI joint.

So I can think of a number of reasons why this treatment would not be ideal for someone with IBD but it is interesting none the less. Someone was thinking outside the box. It also kind of makes me chuckle. http://www.cnet.com/news/vibrating-capsule-may-relieve-constipation/

I have so been there!!! :ybatty::ymad::ybatty: I got no good answers from either GI or Rheumatology, just all grey area stuff. When my son's enthesitis is acting up Rheumatology says his Crohn's must not be under control but then GI looks at blood work and FC and says he is in remission...

I am super hopeful about this too!

:hang: It will get better. :ghug:

FWIW. All of my son's joint issues have occurred when blood work came back normal.

Interesting. There are 8 pediatric rheumatologists at our hospital and 7 pediatric GI docs. Funding model is completely different here.

I have wondered the same thing. My son, and myself for that matter, have the same sleep issues. I thought about giving it to my son and stopped short when I read the warning you describe. I have tried it myself and didn't feel like it did anything so I haven't explored the idea any further.