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My son gets exactly what you describe CDJ. Our docs are also not too concerned about it because all his lab work and fecal calprotectin tests come back normal. They have thrown around the IBS as well as Crohn's thing as well. I too don't buy it. We have tried Buscopan and it did nothing. My...

No Dexa scan yet. That is on my list of things to ask Rheumatology later this week. As far as calcium goes he drinks large amounts of lactose free milk daily and his multi vitamin has calcium in it and he drinks 1 Boost a day. Last year we also supplemented with Tums but I hadn't been doing...

Glad to hear that the pred helped your son Araceli. Hope the taper goes well. My son has been feeling much improved for the last two and a half weeks. His abdo pain has finally subsided and his heel pain is gone. He is still on 10 mg of pred and I will contact Rheumatology later this week to...

Fantastic news!!!

Fantastic news!!!

It's a rheumatologist love fest!!! I agree with the above.

The SSI's are exciting stuff! http://globalnews.ca/news/606100/new-clinical-trial-for-Crohn's-disease/

Modulen does not have carrageenan.

News story on Qu Biologic's Crohn's trial. http://globalnews.ca/news/606100/new-clinical-trial-for-Crohn's-disease/

Thanks for posting those testimonials Tyler. This give me so much hope for the future.

The YouTube video that Jmrogers has posted is excellent. Just want to point out that the girl doing the video takes a lot of time to explain what she is doing. In reality it would take her far less time to insert the tube.

Hi kikidee, My son used a NG tube last year for 6 weeks, he was 10 years old at the time. He inserted the tube every night and had the formula pumped in as he slept. He then removed the tube every morning. He found inserting the tube a lot easier than he expected it to be. He learned how to...

I don't know the answer MLP but wanted to send you a big (((HUG))).

Hi RAISINGMI So sorry to hear about everything your son is going through. I also agree with the others that a dermatologist should have a look at the rash. As for the flushing cheeks, fatigue and abdo pain we are battling that here as well and we have also been told that our son's Crohn's...

Sounds like it could be enthesitis, which is inflammation where the ligaments and tendons insert into the bone. My son has been having problems with this in his heel. I would definitely request to have it looked at by a Rheumatologist. My son is currently on a course of prednisone to treat...

My son takes his azathioprine in the morning with a full breakfast. He has had no side effects from it. Good luck with the new med.

I would agree with this. Commercially grown sprouts are probably one of the riskiest things to eat (uncooked that is). I'd say the only riskier thing would be raw oysters. Growing your own should be ok though.

Yep, we see a link. My son's stress mostly manifests as abdominal pain. The hard part is that my son's pain is what causes him the most stress so it is a horrible cycle that I don't know how to break. We have taken him to a psychologist and he has some deep relaxation techniques that he uses...

I have no advice just wanted to send you :ghug:. For us everything always happens on a long weekend or the day after an appointment where we have told the docs that everything was going GREAT. :voodoo:

Great news!