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I'm almost scared to write this... He feels GOOD!!! We have had 3 full days of school in a row!!! I feel like dancing in the streets. :dance::dance::dance::dance::dance::dance::dance: Now I will make a sacrifice to the Crohn's gods so that I don't jinx things...

My son has normal CRP and fecal calprotectin but still has chronic severe abdominal pain. We have been given the IBS in addition to Crohn's label. It is a hard dual diagnosis to fully buy into. I don't have any magic answers but I would look into the FODMAP diet while GI figures out what they...

So sorry to hear this Sascot. I hope your son is recovering quickly and feeling better soon.

Even more interesting...Hypothesis on how FODMAP might relate to Crohn's. http://fodmapliving.com/wp-content/uploads/2012/07/Fodmap-Crohn's-and-Western-lifestyle.pdf

Interesting FODMAP article. http://www.gastroendonews.com/ViewArticle.aspx?d=In+the+News&d_id=187&i=November+2013&i_id=1011&a_id=24434

The latest FODMAP friendly food item was beef tacos. I made my own taco seasoning without onion or garlic powder, used regular taco shells (only ingredients are corn flour, coconut oil and water), grated cheddar cheese and lettuce. Luckily DS has always HATED salsa and guacamole so these...

The kids and I HATE maple syrup too! I should be careful as I may have my citizenship revoked saying such things. :ylol2:

:wine::wine::wine::wine::wine::wine::wine::wine: Apparently I live under a rock. Didn't know about this smilie.

Farmwife - Here is the recipe. It is easy and amazing but I think it made my son feel bad. :( http://mamasweeds.com/2013/08/13/homemade-coconut-milk-ice-cream/ Dusty - I bought the iPhone app and was very disappointed in it. Definitely not worth buying it. :yrolleyes: So far he is still...

It's beaver tails! Best served in some snowy location. I've never had them with wine but I am willing to try. :) What I wouldn't give to be able to get together with all of you here for a glass (or two) of wine. Just thinking about it makes me smile. :beerchug: We really need a smilie...

:welcome:kelly78 I am with you on that roller coaster! It is so hard to watch your child have to deal with all these things and not be able to fix it. My son often deals with chronic abdominal pain that the docs have no answer for. I hate watching him in pain and I hate that it stops him...

Fantastic!!!

Just made coconut milk ice cream and it was AMAZING!

For anyone curious (and so I remember a year from now) some of the foods he has been eating are. Nature's Path Panda Puffs with lactose free milk pancakes with maple syrup (Bob's Red Mill GF Pancake Mix) eggs and GF toast with small amount of butter (Glutino White Bread) mandarin oranges grapes...

So far he is feeling good!!! He went to school today and stayed the whole day. :dance::dance::dance: Kim - We have also been told that diet doesn't matter. :(

By last night he was feeling quite a bit better! I hope it lasts. It was a bit problematic last night as we had a birthday dinner for my dad at my sister's house. None of the food they were planning on serving was FODMAP friendly, which was understandable as we only just started the diet and...

Only had the one scope at time of diagnosis. They won't do another one at the moment. Flat out refuse. Numerous fecal calprotectin tests have come back completely normal therefore they say that there is no reason to do a scope. At the moment all I get from GI is a referral to psychology...

Hi Tess, We have had no recent imaging done. A MRI was done in May 2012 a few months after diagnosis. It did not show any major scarring and since then all of his inflammatory markers (including fecal calprotectin) have been normal so there is no indication that this should have changed. In...

:welcome: emma-myhero So sorry to hear that your daughter has not been well. My son was diagnosed in grade 5 too. I totally understand your feelings about the NG tube and EN. When my son was diagnosed EN via a NG tube was the preferred first line treatment presented to us but we (both my...

I am sorry you are feeling this way Kathy. I understand the feeling but at the same time I am guilty of what you describe. For myself I find that when my son was/is not feeling well I come here a lot for advice, support, and just to feel not alone in all of this. When my son has been feeling...