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Thank you to everyone who shared their story. I am currently at a lucky stage compared to what most people report here as I suffer from anemia, fistula and bloating. But deep down, I know there is a possibility the disease will get the better out of me. I am trying to prepare myself mentally...

Would like to know if your work is of a high-stress nature?

I have just started my work life recently and just wanted to know if people can share their experience in regards to managing Crohn's and still working? I am not sure what I can expect in the future since my symptoms randomly come and go. I wish I can mostly lead a normal life with this...

I have been having pus daily since surgery with the pus increasing considerably whenever I have BMs. How deep was your fistula and how long was your recovery?

I will make sure to ask the surgeon about this option when I visit him next time. I sometimes pass gas from both my openings so I am not sure why they insist that no internal opening can be identified.

I have done the MRI with the (dye?). Something was injected into my veins while I was having an MRI. Apparently, they found 3 fistulas but I only have 2 external openings and no internal openings can be found. But I have pus coming out of this darn thing for the last 1.5 years. The doctors...

I am on the same boat as you now. 1.5 years with 2 fistulas in 2 different spots. The pain of putting the gauze every morning before work and hoping it doesn't drain too much to the point it soils your pants. Anything that you do to get rid of the fistula? My docs/surgeons won't do anything...

Remicade is a self financing drug and isn't covered. So he wants me to use all other options before going on Remicade. Can a fistula heal on its own if Crohn's symptoms completely stop?

Has anyone had any experience having a fistula heal with Prednisone and Azathioprine? My Gi said controlling the disease should allow fistula to heal on its own. The Surgeon is refusing to do any surgery due to the recurrence and my Gi refuses to put me on Remicade until I have exhausted other...

I had never heard of SIBO before. Thanks for letting me know. I will raise my concerns with him.

I was told I can't starve myself just because of bloating. Any food regardless of vegetables or anything just bloats. I have kept a diary and just about everything bloats. Even if I am fasting the entire day, I bloat. As long as I adequately 'pass' gas, my stomach doesn't bloat but this isn't...

I have been suffering from a lot of Crohn's condition for the last few years that they have become a norm for me on a day to day basis. Thanks for Azathioprine, most of my symptoms have cleared up except 1 major issue...Bloating. I notice my bloating is usually a result of gas. In specific, if...

Has anyone on this forum ever reported fatal conditions or even death due to biologics? I mean actual person on this forum.

To all the people suffering from crohns, I would like to know how you differentiate a fever between a Crohns Flare and other infections? I am on azathioprine and was having slightly elevated temperature of 99.7D for a few days. Today, my temperature hit 101.5F after I came back home from...

I actually agree with you. I think these medications we are taking induces remission in the short-term but say 40-50 years down the line, I could suffer with something worse. I am only 20 right now. I am trying to see if I can stop these medication but the only issue is the damn fistulas. Btw...

Another weird reasoning I am having for going on Remicade is if it ends up being fatal for me, at least every thing would end in a dignified manner

Can we really conclude Aza failed even if it has eliminated all the Crohn's symptoms? I only started Aza after a bad flare and multiple abscesses. By the time I started Aza, I already developed fistulas. I understand only Remicade helps heal fistulas but not Humira? I have lived with the...

Thank you so much for letting me know. I thought biologics are deadlier than Azathioprine. I am not sure if I am comfortable with the injecting myself part. Remicade requires you to get infusions in the hospital right? The hospital I go to basically gives away medication at $1 except for...

I actually started Azathioprine after getting the fistula. Previous to azathioprine, I would have fever everyday and the pentasa wasn't helping. Since my I&D of my abscesses, I started Azathioprine. But I believe the abscess was caused by the fistula in the first place. My GI said some...

I have had 3 fistulas since the start of this year. I got an MRI done 3 months ago and my general surgeon said the fistula is a bit complicated and referred me to a colorectal surgeon. I had an appointment with the surgeon today and I finally got the detailed explanation I needed. So 1 fistula...