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Thanks for the update will let you know how i get on next week, good too i hope. :smile:

joining the remicade club monday! will let you know how it goes :)

hey just wondering how you have been doing? I am going to have my first infusion of this drug on monday morning, bleeding was not being brought under control by steroids with last few years. finally decided to try this so I am booked in for monday morning 9.30 am!

well had my appointment today. starting remicade monday morning 9am. So at least he is trying something else now. so will start reading the remicade club on this forum to see how people are doing on it. Thanks for the support it kept me saine the last week.

Nice one :ybiggrin:

more blood BMs last night and this morning so I guess the prednisolone/predfoam/ oral pentasa/supp pentasa combination has stopped working completely :(. so fed up now i booked 2 weeks off work, and this first week was suppose to be my first recovery week but now i am back to square one. thank...

Hi Xtine Yes I can relate to a lot of your symptoms too. I have was diagnosed with CD in the small bowel but that settled, but it moved to sigmoid colon and rectum. My iron is also low and i am pretty run down at the moment. I also get back joint pain in my fingers, and bad lower back pain. i...

did you look at the never ending nausea thread by shazz on here, there were some suggestions in there i think for natural type stuff like ginger losengers? Motillium is the only one i have tried for nausea and it has helped. but maybe natural route might help you. You must be fairly ran down if...

yes i take this too - sometimes it is the only way i could get through work. i have been told it is okay.

Well at least the remicade is doing something for you at least that is something. It is something i am considering myself. have appointment tomorrow. have you tried taking any nausea medications like motilium?

gosh you sound like you are going through a terrible time? Shouldn't they be doing sometime to tackle the problem by now? Have they done any colonoscopy's, x-rays etc to see where the problem is? How long have you had the nausea is it always or just since you started remicade.

hey my new health food guy in the local health store told me about this today so i searched here and found you are talking about it too :) but I am having bloody BMs cos in the middle of a flare of sigmoid colon and rectum. so going to ask my consultant first at my next appointment but it...

yes it makes sense, i don't like the idea of my immune system being shut down, i'm a teacher so am in touch with potential infections all the time.

just a normal stomach xray - i did not have to swallow liquid. i had a small bowel x-ray before xmas where i drank the stuff. that did not show any inflammation. inflammation is in the sigmoid colon and rectum according to colonoscopy. i am hoping the biopsy from the colonoscopy will be back...

had a stomach xray done when i was admitted to hospital but nobody ever told me what it said. I have never heard of Candida. the wind/bloating constant rattling problem has just appeared over the last few weeks. But I will ask my doctor about it, is there a test for it or anything? I am...

yes i think also getting supplements for hair nails etc could help, i have thick out of control bushy hair, but when i was on 6MP it came out in clumps and started to get very wispy, split ends. And eating a high protein diet, also try natural hair products from health store. I use naked care...

Thanks for your replies kiny :) i will have to reread those articles to make any sense of them, the terms a bit a bit over my head! But basically you are saying its more the underlying problem and these immune suppresents are only short term bandages that do more damage in the long run? Bit...

It is all very confusing. I thought it was suppose to be we that we have an overactive immune system which attacks our gut.

Hi Laura Sorry to hear you are in so much pain, where do you get it when i gets really bad. I know my worst one is just at the top of my belly, the other pains I can deal with but when that one comes on boy it just isn't nice is it!!! Maybe if you describe where it is others might have...

Hi All I have been doing a lot of thinking this last week, being off work I have a lot more time on my hands and I am beginning to question everything. Do any of you ever look back to when you first diagnosed with Crohn's or UC, for me it was 2005. I may be looking back with rosetinted...