New to CD, ??? Have I been in a flare for 6 years?!?

[Earnellzwifey]

I have had non-stop D's for 6 years, 5 to 10 trips a day. Except for time I got severely impacted about 3 years ago. Colon prep would not even make me go. They took out my gallbladder and destroyed my thyroid in attempts to stop it. I get dehydrated and need IV fluids in Er almost weekly. My iron, potassium, and magnesium always is low. Even on supplements. I am currently on Remicadee 3mg every 8 weeks for almost a year now still no let up. I'm taking lomotil, bentyl, and omeprozole.

Any tips to kick this problem? Diet makes no diffrence I still stay constantly nausea and vomit several times a week.

Any meds that I can ask my GI to give me? I go see him Friday.

 

[karj]

gosh you sound like you are going through a terrible time? Shouldn't they be doing sometime to tackle the problem by now? Have they done any colonoscopy's, x-rays etc to see where the problem is? How long have you had the nausea is it always or just since you started remicade.

 

[Earnellzwifey]

Hi karj, I have had the nausea just as long as the D problem. I have had colonoscopy twice, upper endoscopy, several cat scans and MRI's. They all show inflammation everywhere they look. I a apt on my last cat scan but they think it was an infection. I have gotten better since Remicadee just not remission yet.

 

[karj]

Well at least the remicade is doing something for you at least that is something. It is something i am considering myself. have appointment tomorrow. have you tried taking any nausea medications like motilium?

 

[Earnellzwifey]

The only ani nausea meds I use is phenergan and zofran. Neither help to well.

 

[karj]

did you look at the never ending nausea thread by shazz on here, there were some suggestions in there i think for natural type stuff like ginger losengers? Motillium is the only one i have tried for nausea and it has helped. but maybe natural route might help you. You must be fairly ran down if you are vomiting and D all the time. and obviously you are since you need IV fluids in the ER weekly! I just am a bit surprised that they don't seem to be tackling this.

 

[lola99]

Maybe you should talk to doctor about switching meds. I starting having symptoms 6-7 years ago. I'm still dealing with it and im switching meds now because in the last year and half my azathioprine /steriods hasn't given me complete remission.

 

[Avw]

I'm not a medical professional, but maybe they should give EN or TPN a shot to give your bowels some rest and give the meds a chance to start working.

 

[Earnellzwifey]

Ironically after I posted this I had 3 bloody BM and now nothing for 3 days. Now they checkin for a blockage.