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Crohn's Disease Forum

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  1. DougUte

    Humira Club Support Group

    You want to contact the Humira co pay assistance folks because they have other programs for when you are not insured. The co-pay assistance program is the most common. I am not sure how the others work. But it is worth a try.
  2. DougUte

    Entyvio (Vedolizumab) Support Group

    I think I did also. Just to go over things. Had blood tests done.
  3. DougUte

    Humira Club Support Group

    I just did a little research and found out something about the Affordable Care Act that I did not know. Immigrants in the United States on a J-1 visa are exempt from the ACA for 5 years! This means employer's do not have to offer them coverage meeting the ACA requirements. (No pre-existing...
  4. DougUte

    Entyvio (Vedolizumab) Support Group

    Call your doctor. I agree Benadryl would be a good choice.
  5. DougUte

    Humira Club Support Group

    Is she working directly for Disney? I would think Disney would cover her for health insurance while working in the US. I would talk to Disney and see if they have any health insurance plan for their workers. I would think it would work out.
  6. DougUte

    Entyvio (Vedolizumab) Support Group

    Julie, If you think you need to go to the ER, then go. Doc offices can take hours to respond by phone. With the pain you described and the other symptoms, I would go to the ER. Praying for you.
  7. DougUte

    Middle-Age Onset CD

    Hello Boos. I am a 53 year old caucasian male who was diagnosed in 2010. I was 47 when diagnosed. I had been misdiagnosed with IBS for 6 years before my Crohn's diagnosis. I have not had bloody stools except for an episode in my 20's that never got diagnosed. I definitely had a crohn's attack...
  8. DougUte

    Entyvio (Vedolizumab) Support Group

    I am thankful that my veins don't roll away. My wife, Sandy, has that problem. It is no fun.
  9. DougUte

    Entyvio (Vedolizumab) Support Group

    Sorry to hear about needing surgery. I had my last infusion yesterday. Usually for a day or so after I am just fatigued. But it goes away after a day or so. Not too bad.
  10. DougUte

    Entyvio (Vedolizumab) Support Group

    Ron, It took a while but have got better for me. I am now having regular BM's and not having pain. It took getting past the loading doses and getting into the regular (every 8 week doses) so give it some time. I like my results so far.
  11. DougUte

    Entyvio (Vedolizumab) Support Group

    Hello Gemmcn I agree with the others. Since Entyvio has beaten is back this far, I would give Entyvio the chance to finish the ulcers off. Surgery should be a last resort.
  12. DougUte

    Entyvio (Vedolizumab) Support Group

    Ron, I did not experience that with my loading doses. Now that I am at an infusion every 8 weeks I am experiencing normal BM's. Entyvio has been doing well for me.
  13. DougUte

    Putting a Name to my Illness (new and undiagnosed member)

    Jess, I would recommend that you at least let your mom know what is going on. You are going through a lot right now, and moms are usually pretty good at providing support that is needed. You are blessed to have a mom and friends who are concerned. But you are right to post here. We understand...
  14. DougUte

    Entyvio (Vedolizumab) Support Group

    I have had about 2 weeks of normal bowel movements. I have been getting better in my Crohn's symptoms while on Entyvio. It's been nice.
  15. DougUte

    Diagnosed at age 50 & over Support Group

    It is possible for someone with Crohn's to have inflammation of the intestines and have no symptoms. It is not very often this happens, but it can happen. If that is what the biopsies from your colonoscopy found, I would not recommend staying off meds that control the inflammation. Not treating...
  16. DougUte

    Surgery Advice

    I had the surgery only 4 months after diagnosis. I had 3 ft of small intestine removed, plus 6 inches of the colon. In my case the surgeon took the resection and put the ends back together. I did not have a stoma. It took 5 days post surgery before I could eat solid food. As far as the pain, I...
  17. DougUte

    Husband diagnosed with Crohn's disease 6 years ago

    I suspect 800 mg Ibuprofen for 10 years can cause digestive problems. But like the others I don't think it can be proven to be a cause for Crohn's.
  18. DougUte

    Being told I should take FMLA leave.

    I have started the FMLA process. I am applying for both my Crohn's and as a caregiver to my wife, who has several conditions. (Pulmonary Hypertension, Epilepsy, Sleep Apnea, Narcolepsy, and Depression). I hope that things go well and I can get the help I need.
  19. DougUte

    Being told I should take FMLA leave.

    Intermittent leave is what I am asking for. I know that the FMLA is not suppose to be a punishment, but it is known in our Department that people who take FMLA are not considered for promotions. Which is OK with me as I have no desire to be promoted. I would rather retire. But the way I was...
  20. DougUte

    Entyvio (Vedolizumab) Support Group

    No. They are going to do blood work at my next appointment.
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