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My G.I. appealed the decision from the insurance company to deny the weekly Humira. We lost that round of appeal. We filed a second appeal, and lost that as well. The third round of appeal has been filed. In the meantime, my G.I. is providing me with Humira samples to supplement my old every...

I was thinking fistula, but either way it should be checked out.

The problem with stopping the Humira is stopping the med then later restarting it can encourage anti-bodies to form, making the Humira ineffective. I totally understand not wanting to take meds if they are not needed, but realize there is a potential it will cause the biologics to stop working...

I blocked it on my Chromebook using AdBlock. Works well. But my work computer I cannot install software myself. That pop up is really annoying. And i am not going to ask a unknown, online doctor about my condition when I have a good GI here.

Actually, my G.I. filed an appeal, but today I learned we lost the appeal. Tomorrow I will find out what we will do next. My G.I. is thinking that we would move to either Simponi or Entyvio.

My experience is the real bad pain comes when I have obstructions. My Crohns is at the Terminal ileum, so in both the small intestine and the Colon, but mostly in the Small Intestine. I have not had the really bad, severe pain since I had my surgery in 2010. But my disease has not been silent. I...

Here in the states, all of my colonoscopies have been with propofol. I have had 7 of them. Like CAT, I once woke up during the procedure. I was without my glasses as well, but I am farsighted and I could see the monitor. I tried to watch. There was no pain. Finally I decided that I should tell...

In the United States, the manufacturer provides a co-pay assistance program those who are on private insurance (not medicare or other government insurance) can reduce the out of pocket expense to $5.00 / infusion. Next best thing to free, and the co pay assistance program is no charge to the...

This is where I am now. Been on Humira for 5 1/2 years and it has been my miracle drug. But over the last 6 months or so I have slowly gone into a flare and it is not going away. Had the Anser (Prometheus) Humira test and found no anti-bodies, but my level was 2.1. The minimum level is 5.0. For...

I am going through this with Humira right now. The FDA guideline is one injection every two weeks. My G.I. changed me to weekly injections. The Prometheus test showed my Humira level was 2.1. At a minimum it should be 5.0. So we had evidence showing I needed the increase. Weekly injections is...

Well, I was informed by my insurance company today they are denying my change to weekly Humira injections. This change has become a nightmare. I hate insurance company's playing doctor. They told me that they would cover Remicade, Entivyo, or Cimzia. So it looks like my days in the Humira Club...

If it was me, I would pursue both possibilities. I know my partial obstruction caused pain that radiated all through my back. The arithritis is also a possibility, as well as IBD.

Eleanor Rigby is correct. Partial obstructions come and go. And with them come the pain, the ribbon like stools, and the other symptoms you described. Most of the small bowel is not reached by the colonoscopy and the upper endoscopy. I hope things start going better for you.

Your "pains" sound all too familiar to me. And considering when the flares happen you have flat ribbon like stools it seems that you might be fighting a battle with a partial obstruction. Have you had an abdominal CT performed? That was how they finally diagnosed me with Crohns. It was after...

Hey Jon! Glad you found the forum. I don't know what part of Utah you are from, but there is a support group sponsored by the CCFA that meets in Salt Lake City. http://www.ccfa.org/chapters/local-chapters-index-page.html?chapter=334310402 I have not attended it for a long time because of the...

Hi Pat. I, fortunately, do not have RA. However, my mother had it and I have Crohn's Disease. I personally believe the 2 diseases are cousins. So many of the same medicines are used to treat both diseases. They are both inflammatory diseases. In fact, my chief Crohn's med is Humira, which was...

Hi Gutless, Welcome to the Forum. Liscol is correct. Those of us with depression have a shortage of serotonin. I would talk to your GP and get put on an anti-depressant. I have taken Paxil and Abilify to help with my depression. I actually have been on them longer than I have any Crohn's...

So sorry you have to deal with this disease Megan. Crohn's disease of duodenum. Not the usual place (the terminal ileum). It is good that you are diagnosed because now you can begin treatment. As for comparing the disease to your grandmother's crohn's, remember that there is much better...

My most recent colonoscopy found an active ulcer at my anastamosis site, in the colon. The biopsies came back and showed inflammation. So my GI determined that it was a sign of active crohn's disease. Sounds like a similar scenario you have. I would get a second opinion if I were you.

Lifetime Caps scare me. But I listened to President-Elect Trump's interview on 60 minutes and he was very specific about wanting to keep the ban on not covering pre-existing conditions and keeping kids on their parents insurance until age 26. If he is willing to keep the ban on lifetime caps as...