- Joined
- Nov 14, 2016
- Messages
- 2
Hello everyone,
My name is Jon and I have been diagnosed with Crohn's disease for just over 4 years. It seems like not too long ago. I first found out after experiencing black-outs while going to the restroom. From there I went to the ER as I was experiencing blood while going to the restroom. After a quick battery of tests the Dr. believed Crohn's was a probability.
I was referred to a specialist, my current GI. After more blood work and a colonoscopy, I was diagnosed.
At first I could not believe it. I was in my mid-20s and very healthy most of my life. I did not know how to feel, I also did not really understand the depth of it all.
Through the years my condition has been mostly stable so far, no surgery yet. I take Humira bi-monthly, since I have been diagnosed. I have learned alot about the way my body reacts to different foods, I mostly maintain a vegetarian diet with no dairy. I take B-12, D3, and probiotic supplements.
Last month I was on vacation and had to be hospitalized with c-dif. The hardest part of all of this is feeling like a burden to the people I have relationships with. I have far more fatigue and back/joint pain now than when I was diagnosed, at times it feels like they are tired of hearing the same things.
Fortunately I have a job that allows me to work from home, it also does not require much physical work. For some reason it doesnt always feel like enough. I struggle with depression and anxiety and quite a bit of that stems from Crohn's. Its difficult for me to feel like I have options because I need to make sure I have coverage for medical needs and works well with my ups and downs, even if that means I am doing work I don't enjoy.
I'm 6'3" and currently weigh 144lbs. I cried last time I was on the scale because I had dropped 10lbs since I last checked. I have a hard time eating, or flat out forget to eat just because I dont feel hungry, in general I dont enjoy eating foods as much as I used to.
I was inspired to reach out for a support group(here I am!), i'm not sure what is out here where I live, im trying to find a local group, but this seemed like a good solution as well.
Phew, thats alot I know. I'm not one that will usually put it all out there like this. I feel like there will be many here that empathize with much of my experiences.
Thanks for listening!
My name is Jon and I have been diagnosed with Crohn's disease for just over 4 years. It seems like not too long ago. I first found out after experiencing black-outs while going to the restroom. From there I went to the ER as I was experiencing blood while going to the restroom. After a quick battery of tests the Dr. believed Crohn's was a probability.
I was referred to a specialist, my current GI. After more blood work and a colonoscopy, I was diagnosed.
At first I could not believe it. I was in my mid-20s and very healthy most of my life. I did not know how to feel, I also did not really understand the depth of it all.
Through the years my condition has been mostly stable so far, no surgery yet. I take Humira bi-monthly, since I have been diagnosed. I have learned alot about the way my body reacts to different foods, I mostly maintain a vegetarian diet with no dairy. I take B-12, D3, and probiotic supplements.
Last month I was on vacation and had to be hospitalized with c-dif. The hardest part of all of this is feeling like a burden to the people I have relationships with. I have far more fatigue and back/joint pain now than when I was diagnosed, at times it feels like they are tired of hearing the same things.
Fortunately I have a job that allows me to work from home, it also does not require much physical work. For some reason it doesnt always feel like enough. I struggle with depression and anxiety and quite a bit of that stems from Crohn's. Its difficult for me to feel like I have options because I need to make sure I have coverage for medical needs and works well with my ups and downs, even if that means I am doing work I don't enjoy.
I'm 6'3" and currently weigh 144lbs. I cried last time I was on the scale because I had dropped 10lbs since I last checked. I have a hard time eating, or flat out forget to eat just because I dont feel hungry, in general I dont enjoy eating foods as much as I used to.
I was inspired to reach out for a support group(here I am!), i'm not sure what is out here where I live, im trying to find a local group, but this seemed like a good solution as well.
Phew, thats alot I know. I'm not one that will usually put it all out there like this. I feel like there will be many here that empathize with much of my experiences.
Thanks for listening!
