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I'm sorry your daughter is sick. The parent group here is fantastic. I hope she's feeling better soon .

I understand. It takes time to come to terms with this psychologically. It does get better. And life goes on.

Hi and welcome. I'd suggest getting a book written by a gastroenterologist as a starting place. I got one by Professor John Hunter. He's a GI specialist in the UK. I found the book easy to understand and it covered a lot of topics.

Hi Jason and welcome. Sorry you've joined the club. What you're feeling is very normal. Give yourself time to adjust (it may take months or a year or so to fully come to terms with it. It does get better. Are you under the care of a gastroenterologist? On any meds to get you into remission?

Hi and welcome. Sorry about your sons diagnosis. My first suggestion is to get a referral to a gastroenterologist. Crohn's can be tricky and really should be handled by a specialist. The doctor is working to get him into remission but one remission is achieved he needs follow up care...

Good to hear. Please keep us posted. I've never experienced that but have been told to get checked out if I get a fever.

Is she running a fever? Personally I'd call the doctor just to be safe.

So I am anemic. I start iron supplements today. We shall see.

Hi and welcome.

Hi and welcome. Give yourself time to adjust. Flare ups require some adjusting but when healthy I've always been very active (cycling, ice hockey, softball, etc.). This past September I even got a gym membership again. Sending you my support.

I'm clean thankfully.

I've even had a full workup with the hematologist (full bloods, bone marrow biopsy, scans, and yearly follow-ups) to rule out any blood/bone marrow cancers that may be causing fatigue. I'm sure I'll be going through that again sometime down the road.

Almost forgot: The hemoglobin is good. B12 is good All based on most recent blood work. The hematologist (had an appointment last week) suspects my iron is low. I'll get that result ttomorrow also. I'll let you know.

So true. I've only been on it a year. The first drug that has ever worked this well, this long. A small side note, I'm just finishing a 12 week CBT program to help get control of my anxietyand stress . I'm so pleased with the results.

My blood was checked last week. I'll call tomorrow for the results. I'm on Remicade and azathioprine. Hadn't really thought that Remicade wouldn't work forever; makes sense. It's worked so well for me. Fatigue is a constant but the last couple weeks have been terrible. Today's has been...

Thanks for the reply. The blood was one time and I think it was probably from the stoma (in retrospect). No fistula, no pain, nothing. So problems can happen even on Remicade I guess. Thanks again.

Hi and welcome. Sorry you've joined the club. Crohn's can be a sneaky disease. I've had fistula problems in the past. Sending you my support.

Is he drinking lots of fluid? I have ended up back in hospital because I got dehydrated. Got very weak. He really should call the doctor at the very least.

Acceptance of the disease is similar to the stages of grief. (I've read that on this forum numerous times). It's a lot to absorb. It would probably be a good idea to go to the library and check out some books written by gastroenterologist. Be careful of the internet, there is some truely...

Hi, It could all be part of the Crohn's. It does get better but it takes time to come to terms with it. Give yourself lots and lots of time. Are you on any medication yet?