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Hey everyone, so im currently chained to the toilet today with a small reaction to something I ate (i think). And was wondering what everyone's routines are in this situation? Do you do anything to cheer yourself up etc. For me I play music in the bathroom, depending on how bad the symptoms...

I have the same, although also have CFS and fibro. So unfortunately am hit 3x when I exercise. It can be very frustrating as GPs love to point out I'm overweight. But I'd say do what you can within your bodies limits. And possibly start super slow and build upto what people can normally do. If...

I eat 2 meals a day, no snacking and only drink water. If I have a flare I either eat one meal, or I snack instead of have full meals

Your not alone in this. My crohns is in exactly the same place, terminal ileum. And also a large stricture and i had regular obstructions. I also have ibs too which I found hard to control both. I was left after constant tests, for me the only tests that showed the area fully was a barium mri. I...

I am in remission and unfortunately can't eat alot of foods. I have crohns in my terminal ileum, which has caused ibs and lactose intolerance. So for me it's anything with fibre, fruit, veg, oats, wholegrain, caffeine etc. I can take potatoes, sweet potato (smaller amounts) and onions with...

I have been on azathioprine for about 7 years now, and only got to remission whilst on it. But he is now asking questions about taking me off of it as its been so long. I don't mind lowering at most. But it scares me I will be taken off, go active and it won't work for me if I go back on it. So...

I had nausea from azathioprine for a good year or two. It wasn't until I was in remission and drastically adapted my diet (no fibre, lactose) that I then had the nausea stop completely. So for me, I don't know if it was azathioprine making it worse, or causing it or being in active crohns. it's...

Hello everyone, 👋 I hope everyone has been safe and in good health. I was just wondering how many people have had covid with immunosuppression medications? (Azathioprine etc) What was your experience? And do you shield/be careful still? I've been pretty much shielding the whole time except for...

I am in the same situation. I'm on the highest dose of azathioprine for my size and am in remission. So mines said about coming off of all medication! I said I'm really worried about that, despite the covid situation (still mostly shielding). I'm 36 and have been on it since I was 30 and have...

I never knew this could happen to us. But it has made me wonder if it is connected to a random patch of lost voice I had earlier this summer. So I have acid reflux, crohns and a plethora of other stuff. One day I was singing away to a song and I noticed I couldn't hit notes, I'm no singer but...

Im on 150mg daily of azathioprine and due to restrictions on my diet, I have very very rarely had any alcohol. And none for years now as it can cause flares for me. I did however notice that when I had a drink (at weddings) it would get me feeling drunk very very quickly. Now I never was a...

I am on azathioprine (imuran) and have had 4 covid shots so far. So far I've noticed a difference in makes giving me quite bad pain in my arm after 3 or 4 hours, which lasts a good 4 or 5 days. Pfizer I had the worst pain for that. Other than that the first one I felt knackered, slept like a log...

I apologise for such a late reply. I ended up having the biopsy done. It ended up being a larger tumour than they thought. I now have a pretty decent sized scar, a tumour gone and a very relieved me! It turned out to be a mole that mimics the worst skin cancers, but infact is perfectly safe and...

I have taken so many years figuring out my intolerance and dodgy foods. Basically anything healthy will make me flare unfortunately. Fruit and veg is my biggest no no apart from potatoes and onions and small amounts of very well washed lettace and tomato sauces. I am lactose intolerant but I...

I also get this. For me I have ibs and ibd and although it used to sometimes be around ibd flare ups. I've since noticed it can be totally random and for no reason as I'm in remission. I do wonder if for me it is slightly psychological. Because food has caused obstructions and so much pain...

I have both ibs and crohns, personally I think my ibs started first. But it's so hard to know. Now I have lactose intolerance as well as 2 vitamin deficiencies and acid reflux. All from ibd. My crohns was not diagnosed for 7 years, until it got to stricture stage unfortunately. It's super common...

Thank you both for your replies. It really does help me in more ways than I can explain in words. For one this has solidified in my mind that if I do get the chance to get off of aza, I will! I did read somewhere that it's very normal for cancers (mainly skin cancers) on aza. But staying on it...

Hey everyone, so I was originally on entocort for my crohns. But it didn't stop the obstructions and so was put on 150mg daily of azathioprine for around 3 years now. I have been in remission ever since, I also have alot of other illnesses (don't we all!) And have found it hard knowing if some...

Im 5'5, used to be 5'6. I dont know if ive shrunk a inch or its just due to my terrible posture.

I have a b12 deficiancy also. I had my loading dose (3 times a week for 3 weeks) then when it came to my next one 3 months later my GP refused and said im back to normal. When i saw my GI a few months later he asked how my injections are going, i told him they wont do it as im normal. He looked...