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I know someone who has made a claim for misdiagnosis and refusal to test for her mum, resulting in her death from cancer. I honestly wouldnt recommend it. The stress and refusal of treatment to the rest of the family was very bad. Youll find they pull ranks. I also have a family member who as a...

Just a quick update, my IBD nurse got back to me. She is such a life saver. I honestly feel like she cares. She is dealing with it all, my GP wont answer phone to her and shed been trying for hours to get the fax number. She said not to bother trying to get hold of my GI as she cant either and...

I know exactly how you feel. I have been having obstructions and felt manic at times with my symptoms since having my crohns "under control" with all tests coming back good, or borderline. But felt so awful, i was given a load of medication. One was antibiotics for sibo, and buscopan. I decided...

I honestly wouldnt worry too much because they know you have crohns. I do have a few little tricks i use at home when people are round or something similar. I put a few squares of toilet paper down the toilet first. Also i run the tap. Never thought id love noisy taps lol. Or if i have my phone...

Thats a good idea sophabulous, about the book with my results! I might ask them about that, because at the moment i dont touch or see any results ever. I just keep getting my pills and hope its ok. When i see my GI he'll tell me its fine, if i ask him to check my bloods. I think i will say to...

Hello everyone, i am on azathioprine and of course have my regular blood tests. My GI has said every 2-3 months now. I had one in january and one 2 weeks ago. The forms are either from my GP or the hospital ones from my GI and i fill in the section "copy to" with GP and thats been fine for 6...

I have a heart condition where my heart rate is always too high. Also skipped beats etc. So i have medication to try and slow and regulate it. I do remember hearing a long time ago alot of crohns people saying they had high heart rates. But if its not a condition, maybe it could be due to pain...

Ive also had the same experience and same machine as katierose00. I had to get there at 7am, drink 2 litres of some kind of laxative as fast as i could over 30mins. Then i couldnt get off the toilet for 2 hours so missed my call haha. Then you get a line put in and lay you belly down in the...

I totally agree, here is exactly where i look when im given new meds, hear names ive never heard of etc. Love this place!

I have this problem alot. I wear trousers 2 sizes up that come up really high and are loose enough to just touch my stomach. I used to wear corsets most of the time so i like something on my belly. I cant go near elastic banded knickers, i get the lace ones with no elastic in a size bigger. Also...

I had a horrendous time with tooth ache when i needed a root canal a year or so ago. I had neuralgia and was climbing the wall in pain for weeks. As i was living on tramadol at the time my dentist said he cant even give patients anything as strong as that so i had to live with it.

I do feel for you, i know what that frustration feels like when you just want a diagnosis so you can know what your dealing with, and how to treat it. I went through the same for 7 years of no testing, then 2 of tests not showing anything. I had colonoscopy, endoscopy, xray, scan, MRI, bloods...

I get boils pretty regularly. when i get a boil i can gaurantee it will last weeks until it goes. And please dont squeeze it, i made that mistake and 2 years later i still have the scar! My GI said it is due to our systems being run down and being generally so ill. It must be, as i always get a...

When im constipated i either dont go at all and by the end of the first day i end up really bloated, uncomfortable and pain starts. Then normally the second day and beyond i either sit there on/off straining for about 45mins with little to nothing to show for it. That leaves a really strained...

I know how you feel, you just want a break. Just to rest and get abit of peace to build yourself up for the next flare etc. I have alot of illnesses so never have "normal" days. So i know what you're going through, hope it settles so you can get a decent problem free time.

I do also have crohns and IBS, i know how you feel. To make it harder ive had both within a year of eachother so sometimes i cant tell. The only time i can tell is when its a obstruction from my stricture, theres no mistaking that pain. But i do hope you get better and your work etc can get back...

Yes definitely. I think if its not a symptom written on there list, they just ignore it. But we know our bodies.

I have this, its a hard to describe feeling but i would also say like a vibration. I get it quite alot but more so when im coming upto a flare or obstruction.

I have called my IBD nurse thursday, but they only do it by voicemail and they call back at some point. No call back still! I looked at GP appointments and thats 2 weeks. I do feel better though, the soreness is getting much better and at times i dont have it at all. I honestly think it could...

I also am a firm believer that everyone is different. And for me that was just not for me. I had nausia, headaches, fever and dizzyness. And to add insult to injury it kicked my crohns off so bad! Thought itd pass as its a new drug to my system. But then i had one night (2 weeks in) that i...