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Hi everyone, I have been in so much discomfort and felt so unwell the last week. Its hard to explain but it can be painful, but definitely not obstruction pain or anything like that. But i just feel so sore, my stomachs like a washing machine. Ive been mainly going to the toilet the once a day...

Mesalamine, i really reacted bad to that and had to stop instantly.

It definitely is normal to get those times where you just eat them anyway. Having pressures in public, down days, days where you think your ok, so "itll be fine". Weve got to have abit of enjoyment in our lives lol. Its just a risk evaluation for me.

Im on 150mg of aza and it definitely has affected my skin, not hugely but its definitely dryer and more sensitive to cold weather. Maybe its kicked off a sensitivity for you. I would call GP or IBD nurse. They might want to do a blood test asap just to check. If its normal i would see your GP.

Im not on injectables yet but i had this conversation with my IBD nurse as i have awful veins. She said it would definitely be better to start me on home injectables then as its hit and miss getting someone good enough on the day to find a vein. I totally feel your frustration, and i hope you...

My normal coffee in the morning (to poop), sour dough bread with rosemary and salt with olive oil and balsamic for dipping, and just had a bacon sandwich for dinner. Yesterday i had a steak soba from wagamama and that was it allday. So i would say my days can be quite varied. Im also not one for...

I have been on tramadol and before that cocodamol but that is also due to my fibromyalgia and when i get pain in my lungs. I was taken off cocodamol and onto tramadol by my GI due to constipation. But honestly i dont think theyve ever even considered pain management. I would maybe ask them for a...

I have both and am currently on steroids again while they work out if my current flare is a crohns flare or ibs acting up. Ive had the blood, stool sample and scan done to test it all.

I dont take food with me as i just cant eat lactose foods or fruit and veg, which i normally can find a few limited options. But i do eat before i go out to peoples. Up until last year i did just eat what was on offer with family or friends as i didnt want to make a fuss. But then i got on a...

I dont have one. And I know for a fact my fiance doesnt have a clue which meds im on as you know what its like with steroids (on for a while, tapering or off). But to his defence im on so many meds i cant remember off the top of my head lol. I might put a list in my bag.

I personally find it hard to keep up with the texting and remembering the different conversations, and general goings on in different peoples lives at times. It shouldnt, but at times when im bad it can feel like a effort. But i do push myself to keep up. I had a friend years ago who cut off...

Im on azathioprine and i stay away from anyone whos ill like the plague! I did get a cold from my fiance and it did really hit hard even though it was only a mild cold. Also in the past ive got respiratory infections from simple colds. So i would hold off until your better, you dont want it to...

I find the hardest part to be the obstructions, and how you literally cannot tell when your going to flare or have a obstruction etc. For example i was fine going to bed Thursday, no pain etc. Woke at 4am puking and on the toilet for the next 9 hours on and off! I can be fine then suddenly...

That is disgusting. Makes you feel like they dont understand at all. I mean, what do they think your doing in there!?! I would definitely ask your IBD nurse for support, and your GP to explain in that note, that witholding toilet breaks or timing you could result in worsening of symptoms and...

If youve seen them in that time or called for results they definitely shouod have seen that. The results are there, they just dont seem to have seen them!?! Do you have regular blood tests? They might now to keep track of your vitamins. I do feel for you because it does seem like one thing after...

I didnt know about this until my last obstruction at halloween but my IBD nurse called and when talking about my food intolerances she said she thinks i also have IBS and lactose intolerance. She thinks some of my cramp type pains are IBS, but my bad pains are IBD. She said it is common. I tried...

MERRY CHRISTMAS to everyone!! Hope its full of lovely pressys and family.

Im not sure but maybe dehydration? And also strictures can be fatal with obstructions etc if untreated.

I was diagnosed with it by a GI who was awful. Had a endoscopy and he confirmed diagnosis even though nurses said all clear on the results. Fast forward to my good GI and he said all results say no oesophigitis, and he cant understand why i have that diagnosis at all. My bad GI refused to send...

This post has just sealed the deal for me with bidet seats. I was umming and arring as ive never used anything like this before and worry my partner might not be happy its there. But i can get so dry and painful from constant wiping that after 4 or 5 BMs it starts, by 10 its awful! And as much...