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Crohn's Disease Forum

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  1. Pug Gamer

    Did I do wrong?

    Of course you should, look we dont ask for this disease. It is incredibly hard to get through everyday life with this. And your working life was cut short due to this, so you definitely should have some financial help. I will say one tip for you, try not to get stressed with the benefit system...
  2. Pug Gamer

    What was your Crohn's misdiagnosed as?!

    I was told i had IBS for 7 years, with complete refusal for any testing for that whole time. I was given buscopan, anti spasmodics and anti acid pills which ironically is what gave me acid for the firat time in my life. But of course nothing worked and ended up with strictures directly from...
  3. Pug Gamer

    Crohn's, nausea, and inability to eat

    Im sorry your going through this. Im on aza too and i started feeling better after 2 months but nothing majorly tbh. Im told by my GI and IBD nurse that it kicks in at 6 months fully. Until then you cant really tell. I was on entocort steroids until friday, so 8 months on steroids, 3 months on...
  4. Pug Gamer

    Feel better after a BM?

    I get very bloated, and just very uncomfortable and uneasy feelings in my stomach, sometimes aches. Then i have a BM which for me is always quite a urgent thing. And i always feel so much better after, which is why (as well as the urgency) i have a coffee in the morning to get it done with. My...
  5. Pug Gamer

    Oh gosh this is the most embarrassing question I've ever asked

    Like you im not very gassy, but i was horrendously gassy and smelly before i stopped taking my allergies seriously. I would have cheese, veg, fruit and like clockwork have bad acid smelling gas. Could it be something like that for you? Maybe even a new allergy? If you have some already..
  6. Pug Gamer

    My disability claim was denied. Advice?

    Im sorry youve had this outcome. I understand how you feel not wanting to go to tribunal. I wouldnt ever do one again. You can always wait for any new information (tests, results, meds etc) and start a fresh new claim. Anyone whos gone through it cant blame you for just wanting a rest from the...
  7. Pug Gamer

    Starting Remicade + Imuran

    I am on imuran now, its been 3 months and i can honestly say i dont have any symptoms from it. I have more side effects from steroids (entocort). I know how you feel but my GI said to me "you can go untreated and be hit by a bus, you never know. Atleast with this your taking positive steps to...
  8. Pug Gamer

    How do you manage pain?

    I have tramadol and continual hot water bottles. When its a hot day i just cant stand a water bottle but now its colder ive found there helping.
  9. Pug Gamer

    Are my priorities wrong?

    In my experience and 3 other people i know who are ill with various other things. If you cancel more than once they stop your refferal and you have to go through the whole lot again to see a specialist. And cancelling just because its easier for me wouldnt be tolerated with my area. Your body...
  10. Pug Gamer

    Nervous and in hospital. Long.

    Oh god you are in the wars. I hope you feel better and they can safely let you home soon. I cant really help with the heart rate as i have a heart condition anyway, but i do notice a flare up makes my heart rate go very high. But i can see why there keeping you in with such low blood pressure as...
  11. Pug Gamer

    Fibromyalgia

    Sounds like a wierd one, i reacon it could be your humira. Keep an eye out for it getting worse and ask a doc if it gets bad. Only thing id be careful of is if you get a swelling in your leg as that would be a clot but i havent heard of that feeling cold. Hope it goes away and you feel better.
  12. Pug Gamer

    Fibromyalgia

    I have fibromyalgia and havent ever had coldness and burning. Its not tendinitis or maybe a circulation problem? What part of your leg is it? Xx
  13. Pug Gamer

    Opening Pentasa Capsules?

    I take a variety of different shape and sized pills daily and i must say i used to have 4 big capsules daily that i could take but i had problems alot so i would have them with honey. Just a teaspoon full of honey then that pill and itd go down together easily. I admit once i looked like a...
  14. Pug Gamer

    Crohns and heart problems?

    Funnily enough I dont have asthma, never have. But when I was a kid I used to nearly pass out when I did P.E. Now I was a very active, thin kid but I couldnt breathe when I ran etc and I would get dizzy too. I was given a asthma inhaler by multiple gp's which I had from about 5-13 but it never...
  15. Pug Gamer

    FMT (fecal translpant)

    Fingers crossed it works for you. Keep us updated.
  16. Pug Gamer

    Just what is it about having Crohn's!

    I have mixed reactions, a lot of 'oh you must go to the toilet alot?' and 'does it make you very gassy?' but then some realise how bad it is. The only person to really get it is my fiances nan, I didnt know but she was a nurse 50-60 years ago and she had to look after people with crohns. Where...
  17. Pug Gamer

    What do you think/ know about Crohn's clusters?

    I find this facinating that this could happen. I personally had my old best friend who had crohns, but no one else. I still think stress caused ours because we both didnt have the best of childhoods/teenage years or early 20s. I wonder if you can be prone or vulnerable to it and something like...
  18. Pug Gamer

    Crohns and heart problems?

    Im 29, perfect blood pressure, cholesterol and no anxiety etc. I dont know if mine is related to crohns but I have a heart arrythmia/eptopic beats. They tested (before I was on meds for crohns) and found tachy cardia, skipped and extra beats and normal readings when done. My heart is never below...
  19. Pug Gamer

    Crohns pain or child birth

    Well even the hospital thought I might be in labour when I came in with a flare up. And that one wasnt that bad for my flares! So it must be close even from a medical view. Ive never given birth but have had many many kidney stones and infections, stones are not as bad as my flares.
  20. Pug Gamer

    Milk?

    Im wondering if its more than the lactose your allergic to maybe. I fully understand with not having decent cheeses in the uk for us. It also depends what kind of taste your into. But I have found theres a selection of soya cheeses from tesco that are nice. They come in vintage, mature etc and...
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