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Crohn's Disease Forum

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  1. robbo87

    Trying a 2 piece, need some advice

    is the flex the one where the bag sort of sticks on rather than with the locking mechanism? im only about 12 hours in but so far so good, Ive only got "midi" bags which aren't probably as big as id like but ill make sure i get through my samples before i go ordering to much stuff, I think being...
  2. robbo87

    Trying a 2 piece, need some advice

    Thanks for the replies, Put the sensura Click on this morning and so far so good, no rings or anything so I'll see how it goes. the bit where the bag connects to the flange feels a bit bulkier because im used to a one piece but certainly nothing to major. with my one piece it could take a shower...
  3. robbo87

    Trying a 2 piece, need some advice

    Hi peeps, its been a while! how is everyone? So i've decided to give a 2 piece a go, maybe not as a permanent switch but there may be times where it comes in handy. I've asked a few people for samples and some have just come from coloplast today, got the sensura and assura. I normally use salts...
  4. robbo87

    Food you miss the most?

    I really miss cherry tomatoes :( and salad in general, i do have the occasional bit but only very small amounts. I also really used to like nuts but wont go near them anymore
  5. robbo87

    How long til you were diagnosed?

    I had symptoms for about 7 or 8 months before having the courage to go to a doctor, I have a close friend who also had crohns and when i was speaking to him online about my problems it sounded all to familiar so finally went, after that it took about 3 months, It would have been longer but...
  6. robbo87

    Have you ever laughed while getting an internal examination??

    I remember one time when I was sent into hospital on new years eve I had to have a rectal examination and there had to be a nurse present overseeing it... and i just remember saying to her "i bet this isn't how you wanted to spend your near years eve is it" and had a bit of a giggle.
  7. robbo87

    Annoying things people say about your disease.

    "are you sure you're ill? You look fine" "Oh yeh I've heard of that, don't you just have to watch what you eat to sort it?..." and trying to explain that you are too fatigued and the reasons why you can't/dont want to do anything is just a waste of time.
  8. robbo87

    Going to the swimming pool with a stoma

    I went swimming quite a lot at one point, I haven't been for a while now and quit my gym due to an incident but that wasn't anything to do with my stoma. It was something I used to love doing and when I got my stoma thought I'd never do again. But eventually I found the courage to give it a...
  9. robbo87

    So annoyed

    Well, Ihalf expected it but on friday I lost my job :( , I was hoping to go back soon after being off sick for quite a while, but in that time the company had been taken over by someone else and had a complete over haul, and are looking for any excuse to get people out. had a chat with a manager...
  10. robbo87

    Been away for a while but sadly I'm back here.

    Sounds like you've been under a lot of stress which I can't imagine has helped things. Hope you get everything back under control soon Hannah! x
  11. robbo87

    Can't Cope...

    Keep going Holly and stay strong. we are all here for you! I know it's easy to say but thing's will get better :) It's only natural to feel how you are right now and it's good to show your emotions. feel free to drop me a pm if you need someone to chat to!
  12. robbo87

    Mouth Ulcers

    That looks painfull. Whenever I have had bad flare ups, mouth ulcers have always been the first thing to appear and are a sign of things to come in my experience. Hope you are feeling better soon. Mouth ulcers are horrible.
  13. robbo87

    Alcohol + IBD

    I used to drink quite often at weekends and it was quite common for me to end up throwing up from being to bloated. so eventually I started drinking less pints and had spirits and mixers instead. although I never noticed it directly affecting my ibd in the short term, i think in the long term it...
  14. robbo87

    How often is "Often" ??

    At my worst as a result of crohns I was going around 30 times a day. When I contracted C -Diff it was probably nearer 40. But before my ileostomy when things where good and I wasn't flaring I had days where I might only need to go once or twice, Might be a bit more depending on what id been eating.
  15. robbo87

    Hello.. Again... :)

    Just wanted to add that the case is over and the men where sentenced about a month ago. Neither of them will so much as see a jail cell... Pretty disgusted about it all tbh. one of them was going to get 2 and a half years, but as he helps look after his girlfriends children who have autism who...
  16. robbo87

    New to Forum & new to stoma

    Hi foxy and welcome to the forum. So sorry to hear what happened to you but glad you are on the mend now :), You're certainly in the right place!
  17. robbo87

    Do you consider yourself to be disabled?

    I agree with you to an extent, But I think you are getting people coming onto an IBD forum coming on to talk and moan about their problems with IBD confused with people just generally feeling sorry for themselves and being miserable. I follow a few people on facebook for example ( no one off...
  18. robbo87

    Do you consider yourself to be disabled?

    I don't see what's wrong with sharing what medications or what surgerys/experiences you have had. Isn't that what this forum is for or did I get it wrong? Certainly wouldn't say I think of it as a trophy of any sort, As far as I'm concerned I'm no worse or better off than anyone else on here...
  19. robbo87

    Have you learnt anything about yourself?

    I've learnt that I am a hell of a lot stronger than I ever gave myself credit for. That I am not alone, And I also no longer take certain things for granted like I used to, In particular my mum and sister who after the last year I am now closer to than I could have ever imagined before all this.
  20. robbo87

    Do you pay for your supplies?

    I wouldn't take my word on it, and im not even sure its a "loop hole" as such I just wasn't sure what to do but when I told my stoma nurse that I was paying for all my prescriptions she went mad and told me to apply for it so I did. My doctor must have agreed anyway because he had to sign it...
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