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  1. CeeCeeGo

    New Formulation of Humira

    I have used about four of the new pens and cannot feel a thing. It does make you think you have not injected yourself - thank god for the yellow bar! Re: the letter. I did have it but threw it away after two shots. It came about four weeks before they sent me the new formulation. All I can...
  2. CeeCeeGo

    I need some help really scared I may be misdiagnosis

    I am not sure but I was always under the impression that a Faecal Calprotectin poo test can determine whether it is IBS or IBD (Crohns or UC). I currently live in Newcastle and am about to move to Liverpool. If I can help, please PM me. It can be scary when you are first diagnosed, but like...
  3. CeeCeeGo

    Waiting for Surgery

    Good luck with the surgery. I had laparoscopic and recovered well. I would say that it took a while though before my tummy stopped hurting/aching when I lifted something or stretched too much. Even now 4 years on I get the odd twinge if I overdo it but for the first time in 48 years that I...
  4. CeeCeeGo

    Not sure if it is related

    Hi Ron Not sure what meds you are on but the Humira & Entocort can make me emotional suddenly. The other morning out of the blue I just started really sobbing and my hubby wondered what had happened. Nothing triggered it, just one of those things. Sometimes I find a good cry releases some of...
  5. CeeCeeGo

    Advice for long car journey - moving home & flaring!

    Hi Beach My drive is probably only about 4 hours (thankfully not 19!). I certainly don't envy you that! I gave found that in the last few years whenever I first get in the car I start to feel nauseous and my tummy and bowels feel every bump. It normally settles down within 45 minutes...
  6. CeeCeeGo

    Advice for long car journey - moving home & flaring!

    Thanks for the advice about Arestal. I will check with my pharmacy. Also thanks for the info on magnesium and zinc. I have problems absorbing nutrients due to the loss of that part of my bowel through surgery and I am wondering whether I also need to add those two into the mix. A question...
  7. CeeCeeGo

    When Entocort isn't working?

    One of my cats is obsessed with minifigures. If he gets the chance, he carries them around in his mouth and then hides them! I have to keep my eye on him when building. :dusty:
  8. CeeCeeGo

    Advice for long car journey - moving home & flaring!

    Hi Layla The reason my GI does not like me taking Loperamide is because just shortly after I was diagnosed in 2012 with mild to moderate Crohns, my bowel perforated unexpectedly and I needed emergency surgery. Since then, he is always mindful of this and says that he doesn't want to do...
  9. CeeCeeGo

    When Entocort isn't working?

    Hi Cat I recently bought the Holiday Train Set and can't wait to build it (at the new house). I have never had a train set before - I bet it will wind up my two cats! I love Lego!
  10. CeeCeeGo

    Humira side effects

    Hello I have been taking Humira for two years and have had anxiety issues - though to be fair I did have them before starting on the Humira. Also had some insomnia but that seems to be typical with Crohns. My main side effects have been muscles & joints and skin issues. I would suggest that...
  11. CeeCeeGo

    Advice for long car journey - moving home & flaring!

    Thanks for the update. It really touched me reading your thread this morning. WOW - I cannot imagine what it must be like not having a confirmed diagnosis but having to deal with what certainly seems like IBD. I know after I had surgery it was really hard trying to find a med that I could...
  12. CeeCeeGo

    Advice for long car journey - moving home & flaring!

    Thanks for that Cat & Ron. The towel and plastic bag is a good idea - just in case! Like you both, I think the bland diet will come into play and hopefully one dose of Loperamide will do the trick. What will be, will be! PS. Cat - how are you doing now? I was reading your 'Entocort not...
  13. CeeCeeGo

    Advice for long car journey - moving home & flaring!

    Hello Haven't been on here for a while..... Well, in 2 weeks I am moving to the other side of the UK - from the NE to the NW. I started flaring about 4 weeks ago and have been on Entocort 9mg a day for 3 weeks. My FCP came back at over 300 and tests for infections were fine. The Entocort...
  14. CeeCeeGo

    When Entocort isn't working?

    Oh Cat I have just been reading through your whole thread (I had searched for Entocort stops working!) and girl you have really been through the mill recently. How are you doing now? Towards the end of your thread, you were sounding more positive and it was great that you got back to work. I...
  15. CeeCeeGo

    First Trial of Bioelectronic Device to control CD

    I am not sure if it is connected or not but yesterday in the UK there was a news story about electrical implants for rheumatoid arthritis that work directly in our nervous system to control inflammation. Bearing in mind that a lot of our current treatments have come from RA based options, you...
  16. CeeCeeGo

    Go Braveheart !

    Go Braveheart!
  17. CeeCeeGo

    To be sick in the US

    Hello afidz Unfortunately I cannot imagine what is like for you to have CD and live in the US where you need health insurance. I just hope that you can get something sorted in the next few weeks. I am sending you my very best wishes and hugs from across the pond. Take care
  18. CeeCeeGo

    Hopeful signs!

    Good luck with this med. I too, have only just started Humira and hopefully it will work for me also.
  19. CeeCeeGo

    Had surgery today

    Glad to hear you are home. Have a great Xmas and lots of hugs your way. :dance::dance:
  20. CeeCeeGo

    Humira and Listeria infection

    Thanks Lisa for all your advice and the useful links. I think I have let myself get in 'a bit of a tizz' about this and realise now I just have to be sensible. Smoked salmon bagels - here I come! :dance::dance:
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