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thanks cookie. i'm in north florida. the closest places i would even consider going are the University of Florida or U of alabamabirmingham. there's a mayo in jacksonville. i just don't want it to end up going into my vagina when it's not there already. i'm thinking least invasive possible. i'm...

fistulas suck bofa v. depressed. have a fistula that is rightnextto my vagina. luckily not in it, but still. just got my 4th remicade infusion. still not closed up. and it's so frustrating because i'll have a couple days where almost no stool comes through and i get all excited thinking it's...

hi everyone. hope you are all doing well. or as well as can be expected. sunshine isnt your appt next week? hopefully they'll find something. ever - isn't mint supposed to be good for nausea? i find that sipping gatorade or flat ginger ale is good. cat - i was on this board, and my 3 year...

this is different, but perhaps similar. about 2 weeks after my first dose of remi my butt muscles started hurting. not like crohn's hurting, like sore muscles. i think it's because i pretty much sat on the couch for about 5 months. then when i actually could do stuff i just hurt from doing...

oh yeah, i get stool through mine. usually when it's a slightly more soft movement. it got really bad at one point. i once had broccoli come through it. totally freaked me out. :ywow:

i'm in your boat! too bad i didn't get mine yesterday, we could have met! my kid had a stomach bug saturday that i think i caught a super mild version of so i held off til today just to make sure it was gone. anyhoo, i just got the news as well. bummed. they said the infusion center at the...

well, it was either hormonal and they've worked themselves out, or the bug has exited the building, because i've been fine for the last few hours. thank god!

thanks for the advice everyone. i'm going in tomorrow. i don't have any fever/chills/diarrhea/vomiting. i actually just feel super gassy. i'll get a little crampy, burp a few minutes later and feel ok for a while. i think it might be hormonal. i had a really constipated period last week (never...

advice about infusion hello all! i have a remicade infusion scheduled for tomorrow morning. my son apparently got a stomach bug saturday/sunday. i think i caught a milder version of it. late saturday got moderate cramping. sunday i felt better, today has been better than yesterday, pretty...

hey cat - i totally understand about the acid reflux and exercising now! i went bouncy housing with my son the other night and had this horrible pressure in my chest. not a good feeling. then today i went for a power walk and had the same thing. i thought my heart was just worn out from not...

sunshine - you shouldn't feel awful about wanting to get in a flare. when i had an appointment at shands with the oral medical clinic about my mouth i completely stopped the only thing that was helping at the time so i they could see me at my worst. because otherwise they'd just say, oh, it...

tam -- !!! <hugs> that stuff is awful. i only had to drink a half dose when i had my CT, and had a 5 hour ride home. not fun. almost didn't make it to the toilet at the rest area (with bright green poo, mind you) and ended up having to spend the night at a motel halfway home because i just...

@cat - i sometimes finds that it takes me a couple days after the holidays to get run down. like you're running on adrenaline and then you come back and your body realizes what you've done. :eek2: like this morning i wake up and my husband says you look really tired, you have huge bags under...

sorry i've been gone so long. had a long vacation to the parents and inlaws. was a good trip. not too stressful. the fistula is still (very slowly) healing. all of my labs while on the remi have been perfect. have had 3 infusions now. i skimmed everyones stuff.... loner - i got a dx, mainly...

sunshine, i feel so bad for you. i don't even know what to say at this point except you must be a pretty strong trooper. try to keep it up! i'm trying to not get sick right now. hubby is sick. not horribly, but i still don't want it. i can feel my mouth trying to flare up again. which doesn't...

bring your donut. who cares? if you have a large purse you could put it in there and not whip it out til the show starts.theater people are very forgiving.

i definitely notice a lot more skin sensitivity the first 2 weeks after an infusion. after that it kind of settles down.

good news! i'm on my 3rd does of remi too. seems to still be just hanging in there. hoping it will close soon..

good lord shan! i hope you're doing better. go to the ER next time hon! hope your GI can figure this all out..

this may not help if your periods are super severe, but the last couple months my hormones have been whack (i think the remicade is messing with them a little bit), and i've been drinking chamomile tea once or twice a day, and it really does help. it also seems to help with the extra mucus i get...