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yeah, kinda like that. although it doesn't even seem to be sensitive to touch, necessarily. just annoying. i've been doing ice on my butt and that seems to be helping that area a bit. may have pulled something and all the hot baths and lack of ibuprofen may be exacerbating it. i'm pretty sure i...

sunshine, did you ever get the test results back from that fat test?

burning sensation?? i've had 2 loading doses of remicade. been doing well, side-effects wise. the last few days i've been noticing some burning sensations in random areas, like my butt cheek or my arm. it's like i'll feel like i have a sunburn in a small area, maybe the size of a post it note...

oh, and don't ever feel like you can't ask questions. if they get upset or make you feel like you're "naggin" them, then see another dr. don't ever feel like you're inconveniencing people when you are SICK.

have you thought of going to UF instead of mayo? i saw a good dr there, john valentine. he's a crohn's guy, but also ibd. i think gainesville is closer to you than jax.

oh sunshine. <hugs>. i don't know what to say. have you had your lady parts scanned? maybe endometriosis that's traveled up? i saw this mystery diagnosis show where this chick had her intestines coming up through a hole in her diaphragm. they did this test on her where they were basically doing...

i haven't been on it long enough for it to just stop working already. i had my second loading dose last week. maybe i need a few more infusions to really kick it in gear. i've only had 2.

glad you're feeling better cat. sunshine, i hope you hear something soon. i'm getting a little frustrated. i've been doing really well on the remicade. it's been just over 3 weeks. my rectal pressure has gone away, my acne has cleared up, my fistula hole is healing up pretty well. the mucus...

so, i've been on remicade for 3 weeks now. doing really well. then about a week ago i noticed slightly more mucus (it had been gradually getting less and less) and the last couple days i've had a lot more bowel movements (4-5) after it having gone down to 2-3. i am premenstrual. is this what's...

sunshine, littlemiss, allie - that sucks bofa for all you guys!! my gi didn't want to do a pill cam on me because with crohnies there's always the risk of it getting stuck. that, and i didn't really have any symptoms to suggest small bowel stuff going on. cat-glad it's not pneumonia. if they...

small vent - the remicade has my rectal pressure under control. yay. but i must be doing too much, because i think i pulled or strained something in my butt muscles. so now my butt hurts, not from the crohn's, but from doing normal things after not doing anything for 6 months. sad.

nice chart. i was one of the ones correctly dx, and i forgot to mention i had family history, if that info helps. i saw a bunch of different types of drs, as i went to different ones as different symptoms arose. i went to the ER for mouth ulcers, then an internist, then an ENT, who noticed i had...

hope your appointment goes well today sunshine!

xjill- i get blood with hemis. usually on the tp and not in bowl. i think bright red is hemi-fissure, the darker it is, the worse it is.

here's an article about the TSO therapy. http://www.scientificamerican.com/article.cfm?id=helminthic-therapy-mucus

this article: http://www.drweil.com/drw/u/QAA400769/Too-Many-Autoimmune-Diseases.html is more my line of thinking. i think we're so anti-germ now that we've taken away everything our immune system is supposed to fight, and when it doesn't have anything left to do, it turns on itself. i...

yay allie!!!! i mean, it stinks that it's lupus, but it's great that you finally have an answer!!! once you get treatment you'll be great! my mom has a host of autoimmunes, lupus being one of them, and she's doing much better now that they know everything that's wrong.

if she's been that way her whole life, she probably had it before she met your husband.

50% off michaels? i need to get a job there....

i'm glad my kid can't get the flu shots. he's allergic to eggs. i'm all for vaccines for the biggies. but not for the flu.