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360 mg/2.4 maintenance was the Skyrizi dosing to be clear!

Ah...I had no idea Entyvio works best in the large intestine in comparison to the small bowel. I should ask my doc about that, I'll be seeing him later this month. Looking back, it looks like it was 360 mg/2.4 maintenance dose? I was on it for 4 months but got so sick - felt like I was on no...

Thanks for your reply - I actually failed Remicade already, along with Humira and Skyrizi. That might be why we're leaning towards Entyvio now? But can I ask what concerns you most about Entyvio?

Hey all, I recently had a colonoscopy that showed markedly active and chronic inflammation in my terminal ileum, and so my doc is changing my medications. I've been on Rinvoq for about a year now, but started to have symptoms reappear as of this summer. Now, we're adding on Entyvio infusions...

Hi everyone, I have had Crohn's Disease for 10 years and I'm currently in my toughest flare yet. We have bounced from different medications - Remicade, Skyrizi, and now Rinvoq (I'm a week into it). I'm also on Prednisone, and I started to feel a little better so we reduced to 30mg, and now I'm...

Thank you so much for your informative response! I wonder why it says no stricture in the impressions section. Maybe it is just a wide-spread narrowing like you said. Hopefully should hear more from my doc soon.

Hi everyone, I've had Crohn's for 10 years now and am currently in an active flare (confirmed on colonoscopy and biopsies). We also did a CT scan and I'm a little confused about the results. It says mild inflammation but then also says some segments of my ileum are "severely involved" and I was...

Nope, I tested negative for covid. Biospy results were normal, just mild inflammation. But my fecal calprotectin is still very high. They found an ovarian cyst in my MRI but it was just 2.6 cm and I've been told that doesn't elevate the calprotectin

They checked for infections in the stool, but I'm unsure if it was specific to E. Coli. I will ask, though can you have E Coli for months? I've been sick since July. No NSAIDS. My ferritin was elevated at 445, but CRP and ESR are normal. Joints and skin OK. Are there any other conditions that...

MRE came back normal too, and my fecal calprotectin is still really high. What could this be? I'm so utterly confused and no one can tell me what's going on, it's disheartening.

Thanks, yeah the doc clarified it's an MRE. I had a CT scan a week ago that was clear though; is an MRE able to detect things better?? I have no idea why everything but fecal calprotectin is normal

Okay, understood. Maybe I can ask for that test. Right now they're booking me for an MRI, because they think there's high inflammation somewhere (since it was picked up by stool test) that wasn't seen in the colonoscopy

They checked for c diff...and that came back negative. Not sure about ecoli. I don't know what a capsule endoscopy is, this was just a normal endoscopy. They said there was mild inflammation in my stomach and that was it

Hi everyone. Been diagnosed with Crohns since 2012, and have been in a presumed flare for the last couple months. Here's the weird thing. My fecal calprotectin is at 1,250 but my colonoscopy, endoscopy, and CT scan ALL came back normal (but waiting on biopsies still). Anyone been in this...

For about a month now, I've been experiencing what feels like a Crohn's flare (i've had it for 5 years -- for me the symptoms are a mix of diarrhea, constipation, night sweats, fatigue, abdominal pain). I just recently went through a ton of stress -- got laid off from my job and had to move to a...

I was coughing up blood this weekend, which was scary since it's never happened to me before. My doctor told me to go to ER, and I was diagnosed with a pulmonary embolism (blood clot in lung). It's a small one. My gastroenterologist said that sometimes active Crohn's inflammation can cause...

My Remicade infusions are every 7 weeks. I think there was concern over whether my insurance would cover more frequent infusions than that, but it's something to bring up with my GI again for sure. Scar tissue is built up from recurrent inflammation, right? Can that be brought down with meds or...

Hello, My name's Elise. I'm new to the forum - well, sort of - you can say I've lurked these forums for a long time, but this is the first time I made an account and started posting. I've had Crohn's Disease for 5 years. I was diagnosed in my early 20s. I also have Celiac Disease, which I was...

Hello, My name's Elise. I'm new to the forum - well, sort of - you can say I've lurked these forums for a long time, but this is the first time I made an account and started posting. I've had Crohn's Disease for 5 years. I was diagnosed in my early 20s. I also have Celiac Disease, which I was...