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Crohn's Disease Forum

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    health insurance question

    hi, i need to renew for my daughter health insurance that she has thru Florida kids care. got to question if my child is younger then 20 and has chronic and serious medical or behavioral health conditions that has lasted or is expected to last at least 12 months. Shuld I reply YES? does replyin...
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    florida kids care health insurance question

    hi, i need to renew for my daughter ( 9 year old) health insurance that she has thru Florida kids care. got to question if my child is younger then 20 and has chronic and serious medical or behavioral health conditions that has lasted or is expected to last at least 12 months. Shuld I reply...
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    UC treatment options

    Hi, Friend of mine has child 9 year old with UC and is on pentasa ( Mesalamime) and is not working so the doctor wants to add immunosupressant and corricosteroid. she was told the biologic treatment is not first line and from the combo above she can easily wean off and eventualy be withou meds...
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    what are the reasons to postpone humira shot

    what is the reasons and when to postpone biologic med when you sick. what are the rules to not to give scheduled shot. just asking my daughter is coming down with cold . she is tired, temperature 98.9, feeling little nausea. shuld I still give it to her? i cant reach doctor , it is sunday.
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    what are your thoughts any hope in research

    https://www.bbc.com/news/articles/c1wwdd6v2wjo
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    can I give Humira shot day earlier

    her temperature 99 f was only for one day, she was feeling fine besides coughing that was more annoying for her. on sunday it was productive cough. i gave here shot exactly on day as supposed to without problems. She felt good on Sunday and today. Fingers crossed she stays fine at camp.
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    How to travel overseas with 1 year of Skyrizi? let's brainstorm

    not sure how bulky skyrizi injector is, but I just traveled with Humira syringes and due to packaging being bulky I removed 6 of them from original package a placed into 4 all family cooler which stays cool for up to 72 hour. have not have problem with airport control at all. for 6 syringes I...
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    can I give Humira shot day earlier

    My daughter first Humira shot was on May 19 and the second is set for tommorow june 2. I was wondering if I can give it to her day earlier, she is going to sleep camp and wanted to make sure she is doing fine before she leaves. Also is it ok to give shot when little cold- coughing temperature 99?
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    can someone interpret this for me

    she started first Humira 2 days after MRI, so she just started. Can narrowing be fixed? she is not doing EEn, How come someone can be inflamed and has no symptoms at all. How do I know the Humira is working and how soon to see improvement? he blood work came 2 weeks ago totaly normal her...
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    can someone interpret this for me

    can anyone translate/interprete this for me, the doctor is out of office by the end of the week this is the MRE result what reactive mesenteric lymphadenopathy means in this case? Active inflammatory small bowel Crohn's disease involving the distal 15 cm ileum and terminal ileum and ileocecal...
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    MRe for 8 year old

    can anyone translate/interprete this for me this is the MRE result what reactive mesenteric lymphadenopathy means in this case? Active inflammatory small bowel Crohn's disease involving the distal 15 cm ileum and terminal ileum and ileocecal valve with short segment (2 cm) terminal ileal...
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    MRe for 8 year old

    just little update here. My daughter had yesterday MRE and it was breeze for her. She had to drink prep drink 250 ml every 30 min, she did not need to finish whole thing, she cried when they did IV, but was tottaly fine after minute. Being in the machine was easy too. Glad we did it. Now waiting...
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    CurQD has anyone tried it

    I do agree and wuld not replace this as a treatment plan in child. Thought about this as supplement to add to medical treatment plan.
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    CurQD has anyone tried it

    This was sent to me by someone and I was wondering if anyone has experience with this and what are your thoughts https://curqd.com/
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    MRe for 8 year old

    how did you know your child is allergic to stuff?
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    How to travel overseas with 1 year of Skyrizi? let's brainstorm

    i also was looking for options to carry biologic overseas and I found this that keep meds in range of refrigerator for days. can be hooked to USB also. looks cool to me. haven't tried it, but about to purchase because my trip is in 2 weeks. I know this is stresfull to travel with this condition...
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    Humira and side effect what to expect

    Hi ! If I start first Humira shot this Sunday 5/12 the second shot fall on May 26 which is the day we are flying to Europe. Shuld I plan this differently? Since we haven't started yet I am worry about how she will feel after the shot, if the international long flight does not cause any issue. I...
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    blood work result please explain my concern

    I know and thanks , it is still hard for us to deal with that. Thankfully she has no symptoms and doing fine. I understand in this point is important to start treatment to keep it where it is now.
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    blood work result please explain my concern

    I know, and yes I had two opinions. I guess I just needed to reassure myself. Im always questioning why then they do blood work if this does not match inside. I guess it is natural to feel this way when it comes to diseases where is no way to reverse it. is sux From my experience I know case...
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    blood work result please explain my concern

    Yes I understand this is not medical forum, just wonder what you think. She had done colonoscopy, endoscopy and ultrasound (March) that confirmed Crohn " she has severe terminal ileal inflammation on intestinal ultrasound today with already evidence of chronic bowel damage including luminal...
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