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Just curious if anyone's child has ever participated in the summer camp for children/teens with IBD? The NY camp is only about an hour away from us and Anthony really wants to go and meet other kids with CD. I think it is great and I really hope he gets selected to go! We did the online...

(((Rachel))) Sigh ... I don't know how to answer those questions. Anthony is aware there are side effects, some that can be severe, to the drugs, but that they are not the norm. He is not aware of what the exact side effects are ... I don't think we ever discussed that. Ugh, hugs hugs hugs...

Hi Mark, We have no experience with this but just wanted to send you guys hugs and hope that if you decide to use Humira, that it provides EJ the relief he needs and you guys deserve!

Thank you so much guys!!!!!!!!!!!

I can certainly understand being reluctant because of the side effects! It really, really freaked me out initially. My question would be though - if his CRP is 241 and so much of his colon is so inflamed, then do the doctors actually consider that 'in control'? The first GI Ant saw didn't...

Tannersmom, I sure can relate also! Just my luck - I left a job where I was 10+ years and was about to transition to working at home full time, didn't WANT to work at home (!!), and made the move to a new position in June - and Ant was diagnosed in September and it has been extremely...

It was my birthday yesterday ... I couldn't have celebrated a better way, home with all my kiddos! Anthony is getting the teenager-ish attitude back. He is bored. Definitely a good sign! :)

Ohhh (((Rachel))) I am so sorry it wasn't better news, but you are right - it is good to KNOW. Question - can't they start him on something in addition to the pentasa - 6MP or Remicade or something? Even if he is fairly under control right now, just something stronger to try to avoid further...

Ohhh YAY Rachel! Good luck and let us know how it goes!

Ant had a very good day yesterday. He slept well, he had a good appetite and ate real food. :-) Yippee!!

Mark, funny you mention that ... he has 20 staples and he does feel like they are going to pop and it freaks him out, but he realizes that it is just a feeling and not going to happen. He got a good night's sleep last night! It is hard to get back into that normal sleeping pattern. Hopefully...

We are home everyone!!! He isn't feeling very well, but I am hoping it is just him adjusting to life after surgery and being off IV, sore, etc. He seems a little better this evening. Eating small meals, pooping. :) So far, so good! Feels SOOOOOOOOOO GOOD TO BE HOME!!

Thanks Dusty! Finally saw a floor dr who assured me that shed get this taken care of asap and just needed the dosages for our scripts going home and told the nurse to remove his IV, BUT then the nurse said that she wanted to wait for the GI doc to make the call???? Going a little crazy here...

Hi Dusty! (and everyone) Anthony is doing really well! Ate yesterday (soft gi diet) and pooped! Surgeon and GI docs said we can go home this morning, just in time for the twins birthday! BUT - we are awake and ready, and apparently no one told floor docs! He's still hooked to IV, and no one...

He is DREAMINGGGG of Chinese food!! :) Foley came out this morning and he is now eating jello!!

Lol Julie! I will let him know! As he walked down the hall yesterday, all the drs and nurses @ the nurses station started cheering and clapping. It made me teary eyed. Omg, its even choking me up a little bit right now. The biggest sign he is getting better is last night he was arguing with...

Hi Mama, just checking in to see how your daughter's scope went. Hope you got some answers! :)

Thank you soooo much, Mario! What a sweet post! Thank you so much for your kind words. All the parents here are fabulous, aren't they? This would have been so much harder without them! *********************************************************** Today, Ant walked the floor a few times and...

Haha!! Yummmm .... I would give anything for home cooked ANYthing! lol

Thank you everyone!!!!!!!!!!!!!!! Ant had quite some pain last night and he isn't a fan of his epidural, lol. He did get out of bed earlier and we had him sitting up in a chair, and a little later he is going to walk. Still NPO for now. They are going to give him some different pain meds...