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  1. Rebecca85

    Guess I’m back after 10 years

    I used to be active here many years ago (2010-2012 I think) but as my Crohn’s got under control, I got married and had kids, I drifted away. in the meantime I’ve been diagnosed with MS and started Tysabri for that, chosen because it’s good for Crohn’s as well as MS. Anyway, I got Covid about...
  2. Rebecca85

    MMS guy jailed

    Just saw this in the news and had to come and share. I don't know how many here will remember the discussions about MMS (miracle mineral solution). But someone has just been convicted for selling the stuff as a miracle cure...
  3. Rebecca85

    Well, I'm not depressed!

    No one in our family has a diagnosis of ASD, but my brother is a stereotypical aspie, and my dad is 'quirky' (he wouldn't meet criteria for diagnosis though, my brother would). I think stimming is repetitive sensory seeking behaviour (self stimulation) so not just any odd/compulsive behaviour...
  4. Rebecca85

    Well, I'm not depressed!

    We're all doing really well, thanks. My little girl is now 2, and is certainly living up to the terrible twos, she sure can tantrum! But (I may be slightly biased here) she's really bright, cute as a button, talks a lot, and she's getting to be so grown up (her favourite phrase at the moment is...
  5. Rebecca85

    Well, I'm not depressed!

    Some of you may remember me, I was very active during 2010-2012 until I had my daughter. Then a combination of less free time and PND, I just didn't have the energy to help others so stopped coming here so often. I was officially diagnosed with depression and started on antidepressants in Jan...
  6. Rebecca85

    What will 2015 bring?

    Happy New Year (2 1/2 hours to go here). Without going into too much detail, 2014 has been a pretty crappy year and I'll be glad to see the back of it. Here's hoping 2015 is better- good health and happiness is fine by me. Hope everyone else's years are good ones too.
  7. Rebecca85

    Does this sound like a fistula? TMI!

    Quick update- had pelvic/abdo MRI, showed nothing of note Crohn's wise, just some highlighting in the rectum which is probably scarring as a colonoscopy back in April was clear in that area. However, my cervix was 'bulky' so my consultant wants me to see a gynae doc. I just need to see my GP...
  8. Rebecca85

    Sweating with Crohns Disease

    If I'm ill or flaring, my sweat smells odd, like solvents or pear drops. I believe it is caused by ketones. Otherwise, I can often smell myself, like stale sweat even when I just got out of the shower and haven't yet got dressed. I don't know how though, even when I am perfectly clean and don't...
  9. Rebecca85

    Flu vaccine

    I don't get the flu vaccine any more. I used to get it every October, but then I realised I get ill early November every year. Not full blown flu, but fever, sweats, shakes, enough to keep me off work. I missed it 2 years ago as my daughter had just been born, and that year I didn't get ill...
  10. Rebecca85

    Sweating with Crohns Disease

    Back in July, I had a lot to do at work- putting fresh display paper up on the walls ready for the children coming back in September, that sort of thing. However, I sweated so much that a) the paper kept getting wet and wrinkling in my hands and b) my colleagues were worried about me, and were...
  11. Rebecca85

    Funny poop stories!

    That reminds me cat- back in May my daughter (18 months at the time) had rotavirus. She vomited most of Weds night/Thurs day, but was fine Friday. On Saturday we had someone come to view our house. Minutes before they arrived, my daughter let rip with a poo. I undressed her only to see liquid...
  12. Rebecca85

    Funny poop stories!

    My mum's dog really does have some sort of IBD. My mum has to carry poop bags, kitchen towel and a bottle of water on walks now.
  13. Rebecca85

    Does this sound like a fistula? TMI!

    Good point about the pH/balance. I mean I've always been prone to thrush and am guaranteed to get it if I take anti bs, I also get it with most types of sanitary protection, but these last few months I just keep getting it for no apparent reason.
  14. Rebecca85

    Someone please help me- undiagnosed and desperate for guidance

    The problem with scopes is they can only go a little way into the small bowel. It's possible for Crohn's to only affect the small bowel and for nothing to be seen on colonoscopy or gastroscope. I had a colonoscopy a few months ago which was clear despite me being diagnosed and having symptoms...
  15. Rebecca85

    Does this sound like a fistula? TMI!

    Well that's what I thought! I mean, we're told to wipe front to back to avoid spreading bacteria. But dr said thrush is fungal so couldn't be caused by faecal bacteria.
  16. Rebecca85

    Sciatic nerve pain

    I had one episode of it during early pregnancy, it hasn't happened since. I went to my doctors as I have a neuro condition as well as Crohn's, but the dr felt it was just 'one of those things' or preg related rather than being related to either condition.
  17. Rebecca85

    Does this sound like a fistula? TMI!

    And another thing- I saw on the notice board there's a study available at my hospital for a new treatment (plug) for fistula. So if I did have one I think I'd look into the study in more detail.
  18. Rebecca85

    Does this sound like a fistula? TMI!

    Forgot to say- if the MRI shows nothing, he'll refer my to a gynaecologist to investigate the thrush.
  19. Rebecca85

    Does this sound like a fistula? TMI!

    Well, I had an appointment with my consultant to discuss it. He doesn't seem to think thrush could be linked to a fistula even if I did have one, and thinks it's more likely thrush is a side effect of azathioprine. He does think a fistula is a possibility based on what I told him though. He did...
  20. Rebecca85

    Does this sound like a fistula? TMI!

    Well, I've emailed my IBD nurse to let her know what's going on, and ask her whether she wants me to see my GP or make an appointment with gastro. It's Sunday here now, so it will be tomorrow at the earliest before I get a reply, I'll keep you guys updated.
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