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Thanks David....I am going to definitely do the additional 1000...and consider the 2000. As far as the sun....tough call here...he is so pale, I'm not sure he's capable of a tan....but I think your concept of building up time is a good one.

We have our GI visit in a few days so I'm going to request another run of Bloodwork in the near future. I think we went too long this time around given the recent medication changes....we waited 3 months for labwork and I think we probably should have done it in two. My intent is to express...

Man, can I relate to all your comments. When Matt is even slightly uncomfortable, sleep is not a possibility for me. The stress? Immense. I have to be honest, I dont know how some of you do it. I feel like I am barely managing sometimes and not to minimize but Matts concerns seem so...

Hi all. I know I'm guilty of having been scarce around these parts lately. Fortunately, this is because Matt has done well since stopping 6mp about 6months ago. However , this weekend things seem concerning again. Especially to me, because I'm neurotic about him getting sick again. Here is...

What do you think of his D levels being at 29? This despite taking citracal which I believe has 1000 IU of D3.....plus in last 4 months it is declining from low 30 s. I'm considering adding an additional D3 without the calcium..but it's very difficult finding info on how much is too much for...

Boy..thats a double edge sword for a pastey white kid with colitis!

Hey David, Great info...thanks for adding this! My son has been doing well for about one year now...but in last labs we noticed a small decline in vit D ...down to 29 from I think low 30 s. our dr considers it no issue buti would like to see the level higher. What do you think of these vit D...

Yes, welcome. Youre In the right place to find the answers and support you need....and I noticed someone mentioned all the moms here to help. Again, I have to say, there are a few dads as well!:biggrin:

I agree 100 % with Patricia....a second opinion from a major medical center /specialist is a must. The blood loss is a big issue and should be addressed as a priority. I'm glad to hear He's taking iron supplements and also that you had the scope moved up. I've found sometimes you have to...

There's no sense in repeating wha everyone else is saying here except to say welcome, and it's so unfortunate that you needed to find this site. But the good news is that this site is extremely helpful in that all of the info. And guidance you need can be found here.....so many people here with...

This looks optimistic...does anyone smarter than me know what it means exactly? Does it meant LDN will cost a fortune once they move forward? Does it mean dr Jill smith sold out for $$$? Could this company be an Underling of a bigger pharma who plans to drop the ball and cease the advancement...

Now you have me thinking...could the Tylenol motrin piggybacking contributed to the UC issues???

Glad your on the upswing....the Motrin ..Tylenol piggyback saved our ass on many occasions......we recommend it to everyone...of course that was pre UC

Man, I know that feeling. I am an absolute wreck when any of the kids are sick...especially Matt, just due to the UC and fear it will flare. My wife has to constantly remind me...remission or not, kids still get sick......so I sweat it out and so far it has ironed itself out. Have to keep...

To clarify,it appears that the 6mp was always the cause of his liver issues. His Prometheus numbers also were above the line suggesting he was a candidate for 6mp related liver issues....I think the line is 5700.....he was at 5900

No.....we stopped the 6mp completely and the liver numbers went back to normal...so I'm assuming biopsies are unnecessary? i was told biopsies are risky and only done if necessary...?? Anyways, so far, his labs are back to normal even without the 6mp...he's on his max dose of pentasa only....

So sorry to hear about what you're going through. I totally can relate to how you're feeling. Not long ago I was on these boards researching PSC because my son (severe UC) had rising liver enzymes and they continued despite reductions in his meds. Currently the numbers are normal again after...

Kimmidwife......our labs are currently (knock on wood) all excellent.....the ones Left dangling are fecal cal and lactoferrin.....lacto ferrin was positive, however, the doc says this is an unreliable test....the calprotectin he has ordered again....BUT he says it really isn't bad.....it's like...

Well muppet...I feel your pain....it seems to be me and a sea of women....wait? Is that a bad thing?? Anyhow, I have mentioned the whole woman club going on before but I think they finally let me in "the club"...... Sorry that I've been so scarce lately....things have been better for us so I...

Normal labs are such a relief aren't they? Keep riding the wave! Glad things are going well for you all.....:thumleft: