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Crohn's Disease Forum

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  1. M

    Trying to lose weight

    reduce the amount of carbs your consuming. I lost 13 pounds in 2 weeks following Keto
  2. M

    A place to talk Support Group

    I’m not just so fed up with crohns((I’m sure I have it far easier than most) but I’m just fed up in general. I wish life was kinder... I wish I know why god chooses for some people to have health issues and not others. I can try to tell myself on a regular basis that he has a purpose for...
  3. M

    I'm suddenly terrified of leaving my house

    I have a ton of anxiety! Sitting in the car for long periods of time makes me feel extremely anxious. I don’t really go out for long periods of time anymore due to the unpredictability of Crohn’s. Just recently I went to watch DeadPool and I missed close to an hour of it because my body was just...
  4. M

    A question about lymph nodes / lymphoma

    I’ve actually had quite a few issues with lymph nodes since being on Humira. They are often swollen because my body just never gets over infections as it once did. When mine are swollen there are often a few bumps that follows the lymph node track. I did end up getting an ultrasound recently...
  5. M

    Just A Concerned Girlfriend

    First of all thank you for loving your partner and being supportive. One of the things I suggest strongly is to be very mindful of your language. Don’t ever get yourself caught up in a “well I don’t think you understand,” battle. This will be a hard one but—-don’t remind your partner about...
  6. M

    Crohn's and Arthritis Support Group

    Joint issues started long before the tell tale Crohn’s signs. My GI was convinced genetic history and joint issues should have at least been enough to get me tested way back then but they focused on the arthritis for me for 10 plus years. Then they looked into Crohn’s and voila, of course. My...
  7. M

    What's your CRP during a flare?

    They found clusters of ulcers and open sores in my GI tract.best way I can describe it is picture a ‘popcorn ceiling.” They took a few biopsy’s and I was given the diagnosis. Do you know if they took any biopsy’s of anything suspicious looking?
  8. M

    Recently Diagnosed Support Group

    I was diagnosed in 2014. My doctor was hopeful that being on budesonide(entocort) would be enough but in the year I was on it did nothing. I believe I started on Humira at the start of the new year. In a years time on Humira I was in remission. I however make sure to point out though that...
  9. M

    Advice Needed

    Definitely get that second opinion. My fathers has Crohn’s and his GI was even reluctant to refer me for a colonoscopy originally. I didn’t really have many of the classic Crohn’s symptoms ( other than frequent bathroom visits and loss of appetite) but I was having other arthritis mimicking...
  10. M

    Anybody else in by boat?

    I ended up experiencing lots of arthritis mimicking pain for years before I started to notice gut troubles. It started off as a random swelling on my left ankle (ruled out bites etc) and then I started to have issues with all my joints. I had countless testing done and the only out of the norm...
  11. M

    A place to talk Support Group

    Ah, stacked by other medical issues, sums up my life as of late. I at this point try to avoid the doctors office at all cost. Not only do I leave with other medical issues that require more medication but my doctor always has this almost sad, defeated look every time he sees me... Last week...
  12. M

    Pain above belly button?

    I would definitely get an X-ray done. If they see inflammation in that area they can send you for an MRI to get further answers. Could very well be a hernia.
  13. M

    Help! Crohn’s Questions!

    Colonoscopys are often the best source to find direct answers. Most all of my blood work has come back close to normal so doctors have never been able to rely on that to figure out what may be off. Also keep in mind that if doctors are saying your in remission that does not necessarily mean your...
  14. M

    Bursting into tears

    Iain, First of all I commend you for being so brave to post about how you have been feeling. I think that people often forget that with any illness, mental health is and becomes a symptom. There is so much fear and unpredictability. Most recently I have been been forced to realize that my...
  15. M

    Always afraid

    Don't want to seem like a Debby downer but I'm having a rough time. Emotionally, physically and mentally. My mother recently asked me a question, "when did I stop living?" My answer, I stopped when I was 15. My undiagnosed dark age. I was so happy when I got diagnosed--others would be...
  16. M

    My husbands Crohn’s disease is making me depressed

    Sighs---this topic touches close to home for me. I was diagnosed with Crohn's in 2014 but long before I was diagnosed, my father has had this disease since he was in his early 20's. He has now 53 and my mother has been his caregiver for as long as they've been married. My mother tries to never...
  17. M

    I can't cope :(

    I would definitely let your GP know. It's important they have the records of what your experiencing and get on top of them to get you seen immediately. Keep on pounding on those doors. I wish I could say something profound that works for me when Im having roughs days but I still haven't found...
  18. M

    Upping to weekly?

    I've recently been upped to weekly from biweekly. I was always advised by doctors that you have to be consistent with the humira. If you miss a dose you have to then take it just as soon as you remember and go back to your plan of when you take it. I wonder how it is for her but my body often...
  19. M

    Humira/ false allergy results

    Hi everyone, I was hoping someone other there has information about whether humira affects allergy testing. I've been on humira for some time now but not to long ago I was referred to an allergy specialist just to ensure there are no pre-existing conditions as to why I continue to have back to...
  20. M

    I am scared of future pain

    I ended up waiting 10 years before I was diagnosed with anything. When I was diagnosed I was ecstatic to find an answer. My doctor did tell me in all my excitement that with this disease it gradually worsens over time and iften comes with other health issues. He was not kidding! I have not had a...
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