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I work in schools as well. I so relate! I ended up getting diagnosed in the first year I started in schools and in that first year I had to put in a medical accommodation. I felt utterly humiliated that just as soon as my career started there was something already holding me back. I miss...

It's been awhile since I wrote my feelings down here but here I go. Things have been pretty good besides the fact I have little to no immunity left. My infections are 3x as bad as ever and take forever to pull out of. Over the summer I was able to have no infections from July through September...

Don't stress yourself over what the bloodwork is saying. It took a colonoscopy for me to get a diagnosis. For many people actually the colonoscopy is the only fir sure way to determine the progression of a disease. My blood work always showed in the normal range but slightly elevated. It was...

I'm far from the best example of someone who deligently took antidepressants as prescribed by doctors but to be honest it never worked. Ive been on and off them since I was 14. (Now 24, also in Vancouver) my problem with them is perhaps I never was on a high enough dose but all it took was for...

I had arthritis mimicking issues long before I was diagnosed with CD. My joint pains have only intensified since diagnosis. I now have a narrowing spine. Saw a rheumatologist who says it's Crohn's related arthritis but it's concerning to the extent of how quickly my joints are deteriorating that...

I also am in Canada. I still work but had to put in an absence leniency accommodation through my job. Basically as an assurance that I could not be let go due to illness etc. The only people that know is the disability liaison through HR who basically lets whoever needs to that I have an...

What kinds of things did your doctor add in your appeal? My dr wasn't too descriptive so I was denied. I wonder what things should be touched on

Dead forum but I thought I would try to give it a go. Got the tax credit before and tried to reapply and I was denied. I hate getting denied for things and it gives me incredible anxiety. I don't think my doctor explained it enough even though he Canada revenue asked him for more details.😒 For...

remission is such a confusing term. I read online somewhere--in my wtf how I am in remission moment--that remission looks differently for everyone. You could be in remission have no symptoms or you can be on the other side where your in remission but am symptomatic.

I've heard too many times the don't be stressed comment and I just cringe. There is no way to not be stressed out with how things are right now in the world. There are no easy handouts--we all have to work and find a way to pay for unexpected costs. Life would be fantastic if there was no...

I've had multiple chest X-rays done as well as ultrasounds of the lymph nodes. The only thing directly found from the ultrasound was that it was indeed swollen lymph nodes and was put on antibiotics. I'll be on antibiotics for a month now come this week. I don't think I've fully recovered from...

I'm sure my feelings right now will pass but I just feel like giving up today. For about a month now I've had swollen lymph nodes which is something new to my medical history. I've had all the tests done and the only course of action is antibiotics. I get put on the antibiotics and the lump...

I was apart of a children's pain program as well and they seemed very eager to discharge me even after I plead that I wasn't ready yet. Glad to hear your daughter benefited from her program. I hope they weren't pushing her to be discharged from the program so quickly as I was.

what makes no sense is that my RF level was negative so now I'm being referred to 2 different rheumatologist. I guess my case requires a two person opinion. I'm worried they won't find anything in X-rays or MRI's and will give me some title for unexplainable pain and inflammation. As a child...

I have a question for you guys that have been diagnosed with arthritis. How was it determined you have it? I've had joint issues for many years now, I'm sure connecting with the Crohn's. I saw a rheumatologist as a child but I can't recall ever getting blood work to determine if I have a...

Be honest and give her an opportunity to educate herself. If you don't--eventually something will clue in that there is an issue and it may be hard to repair your relationship after that.

It's important you find an outlet. Perhaps something like writing or music. Prior to diagnosis I was really in a bad state and just writing my feelings down helped me put everything out there without feeling judged. When I was then diagnosed I liked watching YouTube videos of people with Crohn's...

That is a great fear of mine... I put in the necessary paperwork this year to ensure I have a job and cannot be terminated. I still don't feel any safer. I'm always worried.

We're here for you. The disease is a nasty thing that will play with all sorts of your emotions. You should really see if you can talk to a therapist who specifically talks to people with chronic illnesses. i find that therapists who see more chronic illness clients are more sensitive to their...

Since I was 14 I was in and out of doctors. Spent countless hours at specialists only for it to be a waste of time. No diagnosis--I became the sick girl who wanted answers but never got that. Fast forward nearly 7 years I got a diagnosis. I'm happy that doctors have been able to piece together...