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Hi all! I'll respond to "lbligh" first: Yes, we've been doing this since 6 years old, he's 11 now, and every time he loses even a pound/slows growing in height, we know something isn't right. A few other clues are bad breathe, eyesight changes, trouble waking in the morning, extended time...

Hello folks! I know there are people who follow this thread, maybe don't reply, but stop in and read nonetheless. I do that too, so I'm going to keep the updates going! Anyway, we went to the doctor yesterday, 16 December, 2014. Since our September visit, we've stayed with Paleo but dropped...

Hello! I'm just updating John's condition. Not good. He has had gaps in his checkups because the doctor has felt good about his progress. That's why no update for awhile. In May 2014, his calprotectin was 69. It had been 20 or under for 8+ months, under 48 since July '13. This...

All I know is that Paleo gave our 10 year old son his life back after 4 years of hell. Four years of trying all sorts of diets and medications. Four years of watching my kid lose a part of his childhood. He STOOD the entire first half of first grade due to fistula. All day, standing...

Thanks!! It's awesome that you're still doing well too!! I think he might have had milk in something on our trip, and the aftershock, of course, lingers. So I hear you on the milk. Still, it's splitting hairs for us. I'll take 69 up from 20, it could be 690. I just can't 100% figure...

We went to the doctor on May 5th, and we FINALLY got the results today. Basically, the same old story, although John's calprotectin did go up--to 69! I was a bit upset at first, since he's been in the 20s, but I feel like I'm micro-managing now the more I think about it--LOL! He's 10 so...

BTW, I've also made fried coconut-crusted chicken nuggets too!! Just sub the almond flour with fine rasp unsweetened coconut. I think the finer the coconut the better, but not flour consistency, of course. You could add a touch of coconut flour to the mixture if your rasp coconut isn't all...

Well said. "Science is for sale" as I always say. Our GI specialist is a 100% pill-pushing-physician. In our case, our biggest concern weren't strictures, it was re-occurring fistulas. So I figured we were safe on raw and nuts, at least in terms of acute pain. And we were fistula free for...

I wish you the most success on this Crohn's journey! There is so much information out there and so many questions, but the good thing is that there are just as many people wanting to help. I pray that whatever path you take works out well for you!!

Try frying. People are SO scared and needn't be. We feed kids chicken nuggets all the time that are SET in veggie oil. Check Tyson's chicken nuggets sometime--set in veggie oil. I just don't get it. Get a good olive oil with a high smoke point, do your research. Frying in olive oil is...

I might have to try this although I'd have to order probably 2 of 3 items due to my location... This is a very cool idea!! When I use chocolate in recipes it's always pure and Paleo legal, but every once in a awhile John gets some Lindt 85% b/c it doesn't bug him at all. Not much, maybe a...

This is AWESOME to hear b/c the more others share their successes, the more we're motivated to keep going too. So thank you! I really hope you stay on board, feel better, and get off the drugs. Keep us posted!! Chocolate. Well, we cheat a tiny bit and use Lindt 85%. So a teeny-tiny bit of...

AWESOME!! I love seeing this news, it helps us all push on further, and must feel great to share! Thank you for sharing this success, and I REALLY hope it keeps on, keeping on!! Eventually we might head down the SCD route, as it allows certain things Paleo doesn't, like yogurt, as you well...

John is still doing great. Not much has changed except I've tried to level off his weight, which was going north a little too fast!! I know things are still good, very good in fact, because of his hair, breath, sensitivity to cold, not to mention the appetite. His hair is so smooth now, and...

Read up on HGH. If growth is a concern, get informed before the Dr. starts talking remission, then HGH shots. Our Dr. wanted John on HGH once remission was induced, but he's backed off since his growth has naturally bounced back. I have a friend with 3 boys, all of whom cannot produce...

I'm all for the one finger salute--I salute with you! Hang in there!! I for one appreciate the information you posted. I have no idea how long our son's success will last, that's why I keep researching, looking for anything that might help later on down the road. One more salute to...

Agree 1000% with you. Our son was "cleared" on both gluten and milk, wheat, everything else you can imagine, multiple times, even with two rounds of biopsies spanning 2 years and 4 scopes. Yet, when I give the big "one finger salute" to the Dr. and remove gluten and milk on my own--the...

All four of our kids were breast-fed until 1. I do believe there is a connection with the transition to cow milk, and no, I don't think a baby has to be fed cow milk as a primary source of nutrition for it to make an impact. Our oldest has Crohn's, diagnosed at age 6. He was a voracious...

**UPDATE** John went to the doctor on February 3, 2014. It's been 3 months since his last checkup and I just got his lab results back today! Continued good news: Stool Calprotectin <21 mg/l & growth velocity increasing! So we continue with Paleo! During these past three months I've...

The bone broths have a ton of benefits, they are so much better than the store bought stuff. They might taste a little different at first, but you're in total control of that. The cool thing is that you can just add water if the flavor is too strong, spices/veggies if it's too bland. Some...