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No need to freak out, you got this! :D I'm doing OK -- LDN is still doing it's thing I think... had a rougher-than-usual day yesterday, but nothing super awful. Today is much more back to normal. Had an Orgain this morning to settle things down a little bit, mashed potatoes and fish the...

Man... tumbleweeds rolling through the LDN forum. How you feeling ctrl z?

Thinking of you buddy! Please keep us posted about this; I've used budesonide (Entocort) previously when I was first diagnosed and flaring, and I would happily use it again if (when?) the need arises. Hopefully it can still be taken with LDN, and I'm guessing it can as 10mg of pred is also...

Chiming in here because of the questions on taking white Vitamin D tablets with some sort of fat -- I used a spoonful of peanut butter when I had tablets, and now I have capsules. I got my D levels retested before I made the switch to capsules though, and my levels were back in the...

Again, this sounds WAAAAAY too familiar. I freaked out about not being able to eat all sorts of stuff when I was first diagnosed, and yeah, my diet was pretty limited for a bit. However, I am in a fortunate position where I can eat a fairly unrestricted diet -- and yes, that includes coffee...

Seconded! Here's hoping the trend continues! I'm sorry that you landed in the hospital, but I'm certainly happy that you are currently feeling better. Feel free to keep on updating, and let us know how the LDN treats you. :)

I can't say what it is for sure, but I will say that my situation sounded like yours, and I had initially thought a lot of it was stress related. You know what though? Don't beat yourself up over it if it's stress related! People are different, and stress-related intestinal discomfort is not...

Hi Sarah, not sure if you're still on the forum with any frequency, but if so, how are you feeling and how is the LDN treating you?

Hey there healthy -- I can't speak for anyone else, but I will say that my CRP was probably pretty low, although I can't remember the exact number offhand. Lower than when I was first diagnosed, that's for sure. I also didn't "flare," per se, during the third/fourth weeks, but I had a couple...

Not sure about budesonide -- I used to be on it, but not at the same time as LDN -- but I know that you can be on a low dose of prednisone (10mg or less, I think?) while taking LDN. No idea about the methotrexate. Some people have noticed a difference right away, for others it takes about 3...

LDN has a very low side-effect profile -- compared to some of the other types of medications out there, virtually no side effects. Some report vivid dreams initially (I had a few myself), but even those go away with time. I had restless sleep a couple times, but nothing along the lines of...

Hey superzeeman -- your gastro doc can prescribe it, but that doesn't necessarily he or she will prescribe it, as it is prescribed "off-label," and is not considered standard of care. That said, others have gone through their GP to get a prescription in some cases, so it's really just a matter...

Yeah, not sure if she'll order a retesting of levels and whatnot, but she didn't last time, so I'm hoping I'll get a blood test and some good results!

As an aside, my band played a great show this past Friday night -- we had a great time and I didn't even THINK about my Crohn's one bit! By that metric, I'd say LDN is working pretty well. :D

Wow, so I just checked and I'm seven weeks in on LDN. Feeling pretty OK thus far... my tummy hurts a bit at the moment, but overall I seem to be doing pretty well! I'm hesitant to say I've seen a super big improvement, but if you put a gun to my head, I'll admit that my days have been getting...

Hi Marissa! Definitely have been there myself. It's not uncommon for Crohn's flare-ups and depression to go hand-in-hand, so I'm not surprised that you feel like you are somehow a burden (even though you are not!). I felt the same way. It took me a while to get both my CD and my depression...

Hey there tots! I took a short course (about 2 weeks) of it for what we assumed was SIBO. It made me feel better for a bit, that's for sure. Helped with bloating in particular. I guess it's less systemic than other antibiotics -- it permeates the gut less, acting mostly on the bacteria...

Alright... here's where I'm hoping that this is just a little bump in the road, or the "when-you-take-LDN-it-sometimes-gets-worse-before-it-gets-better" phenomenon that I've read about on here. Kinda had a rough start to my day and even had to duck out of a training session at work for a few...

One month in! I'm feeling pretty OK for the most part -- yesterday was a bit rough, but that's my own fault (friend's birthday celebration = a bit too much booze). Strange dreams have largely subsided, and there are no other side effect issues to be reported. I'm still a little unclear on the...

Good call. I've been sticking to LDN and Pentasa as well, but I know that my diet has slipped a bit, and I'm waiting for the other shoe to drop (while kind of hoping it doesn't drop at all). I'm not misbehaving toooo much, but I do wonder every time my tummy grumbles or if I have a twinge of...