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I understand your hesitance when it comes to the heavy-hitter drugs treatment options, but please consider the fact that these drugs may help get your stuff under control quicker, which is the name of the game. You don't want lasting damage, as I'm sure you know, and LDN can be great but it's...

I don't experience night sweats, but I do supplement vitamin D, if that helps at all. Not sure if there's an actual corollary between vitamin D and LDN effectiveness in my case though -- it might just be a coincidence. Candida overgrowth can certainly be a problem when it comes to LDN, that I...

Hi Sally -- Not sure about biologics, but I personally take Pentasa and LDN. I'm tagging Jmrogers4 in this -- I believe her son Jack may have been on LDN and another form of treatment at the same time. This is purely a guess, but while you may need some more heavy-duty treatment in order to get...

Perhaps someone else will weigh in on this, but I have no experience with transdermal/topical LDN, so I'm not sure how it's supposed to work. Also, how was he doing on the pills beforehand? Any improvement after 4 months?

Hey Troy -- first and foremost, best of luck to your brother. LDN isn't standard of care yet (meaning many doctors aren't usually quick to prescribe it, and some may be reluctant to prescribe it at all), and I'm not in California, so I can't comment on doctors that are willing to prescribe. That...

Educated guess based on other correspondence on the LDN forum, but I don't think the LDN should really counteract or interfere with anything that the Remi is doing. It seems like LDN and biologics can co-exist peacefully. Not saying you're wrong, of course -- everyone's individual mileage may...

Hard to say. Some have reported a quick and noticeable difference, but for me, the change was very gradual, and in conjunction with other medication (in my case, Pentasa, which is also pretty low-grade). It's hard for me to make an educated guess also because I don't know how the difference in...

Good luck Mark! Keep in mind that while LDN does work for some folks, it's definitely a slow process -- if improvements occur, they will happen VERY gradually. Be patient with it. In the meantime, I hope that the Humira continues to work and the reaction symptoms are just a fluke. Keep us posted.

Not sure about this personally, but I'm tagging Jmrogers4 -- Jacqui, was Jack ever on Remi and LDN at the same time?

I would be concerned if I had someone doing it locally that hadn't worked with LDN before, but I will say that I trust Skip's. Seems like compounding LDN is a major part (or possibly the main part) of what they do.

Sounds good, just be prepared to make your case as LDN is not "standard-of-care." It's a relatively unproven drug, as it's still in trials and there haven't been too many published studies on it. The other thing to keep in mind is that depending on the severity of your case, a more heavy duty...

Hi Matty, I've also heard that if you have candida (yeast) overgrowth, it's best to get that under control before starting LDN. That said, I don't know what happens specifically if you take LDN with the overgrowth -- it might just interfere with the LDN, so there is no effect to the medication...

I'm personally not -- I've heard of people "working their way up," but I started at 4.5mg and have stayed there ever since. Not sure if that also has to do with my body size (I'm a 6'2" male, over 200 lbs). I'm not sure about the hows and why's of the 4.5mg designation, nor do I know if a lower...

Yeah, might be good to do a replacement. Surprised about the weaning off 6-MP if you were doing well; I don't know much about the immunosupressants, but I always figured that the if-it-ain't-broke-don't-fix-it approach was the way to go. I can see why you'd want to add LDN to the mix -- I'm...

I can't speak to the Houston region in specific, but from what I've read here, it appears that many (though not all) who take LDN usually get it through a different source than the GI -- a primary care physician, naturopath, etc. I had a GI that was willing to prescribe to me, but only because...

Can't speak for anyone else, but things are pretty steady state for me over here. Aside from the occasional bad day here and there, I pretty much feel like myself and would say that I'm in remission. Doctor seems to think so as well (which reminds me, I still have to do bloodwork from my last...

Hey pbandcrohns, I gotta say, the fact that you are reaching out on a support forum such as this is a pretty good indication that you obviously care for the guy, and the fact that you've been educating yourself on IBD tells me that you're on the right track. Every person and every relationship...

Hmmmm... I've never busted one open. If I get the chance I'll take a look and report back.

Sorry NGNG, I don't follow. Are you asking about ground/powdered naltrexone before it's compounded into LDN? (If that's what you're asking, I don't know personally, but someone else might.)

I just wanted to echo what a lot of people have said here -- LDN works for some people, and it's great, but the process is glacially slow compared to other medications. The name of the game is to get your severe symptoms under control as quickly as possible. This doesn't rule out LDN...