Has anyone tried LDN while on Humira

[Mark180]

I am looking to try LDN, but I need to know if I can do so while I'm on Humira. I am afraid the two might work against each other. Has anyone tried this?

 

[JDTM]

Not sure about this personally, but I'm tagging Jmrogers4 -- Jacqui, was Jack ever on Remi and LDN at the same time?

 

[Jmrogers4]

Yep, we started Remi/LDN but dropped the LDN fairly quickly not because it caused issues, just because he's a teenage and one less med I have to worry about means one less chance of non-compliance. His GI had no issue with being on the two.

 

[Mark180]

Thanks for the reply.

Since Humira is in the same family as Remicade, I would think the combination would be OK.

I'm on Humira and am showing signs of a reaction to it, rash, joint pain. I'm looking to try something else. LDN looks good because of the low incidence of side effects.

 

[nogutsnoglory]

I'm on LDN and Remicade, same family. GI is fine with it. The Penn State trial investigators were ok with patients on both a biologic and LDN. Generally an immunosuppressant is not a good idea with LDN but it soars to be the case more so with drugs like prednisone.

 

[JDTM]

Good luck Mark! Keep in mind that while LDN does work for some folks, it's definitely a slow process -- if improvements occur, they will happen VERY gradually. Be patient with it. In the meantime, I hope that the Humira continues to work and the reaction symptoms are just a fluke. Keep us posted.

 

[lorideco]

My Dr wanted to start me in Humira and I didn't like all those side effects. I started LDN 2 months ago and I feel great

 

[Mark180]

Well since I posted last, I switched to Cimzia. I didn't do so well. I asked my GInto put me on LDN. I gave him articles about some of the studies. He agreed that the studies looked good. He even knew the main doctor. He called her, "a good doctor and a good scientist." He then refused to prescribe the LDN because it is not an "approved" treatment. He wants to switch me over to Entivio.

Not what I was looking for.