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Crohn's Disease Forum

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  1. J

    Started LDN last night!! Dazed and Confused

    It'll pass. I think how long varies from person to person, but I remember sleeping fine within a few days, personally. Other people here have reported vivid dreams for longer periods of time.
  2. J

    Just got my script filled

    Hang in there bud -- you'll be staying up until 11:00PM in no time. ;) But seriously, superzeeman... how's it going?
  3. J

    Low Dose Naltrexone (LDN) Support Group

    It really can't hurt, in the sense that there is a really low side-effect profile -- it probably won't cause you any harm in that sense. That said, I would offer one disclaimer: If you're using it instead of other medications that might get the inflammation under control faster, you might be...
  4. J

    Low Dose Naltrexone (LDN) Support Group

    tincup! Best of luck. Here's my not-very useful feedback: 1. I can't say, because I haven't been scoped since beginning taking LDN. 2. Not sure why it takes so long to work -- in fact, it might work right away, but just really slowly. It's kind of a gradual thing. I noticed a difference at...
  5. J

    Anyone here with experience using LDN and Entocort simultaneously?

    Since being on LDN, I've done a quick taper with budesonide (a week of 9mg, a week of 6mg, and a final week of 3mg) with my gastroenterologist's blessing. It seemed to work for me, as I experienced what I think was something like a "mini-flare," or perhaps it was the beginning of a flare-up...
  6. J

    Low Dose Naltrexone (LDN) Support Group

    Keep your hopes up, buddy. I don't know what advice to give you, but I do have a couple of follow-up questions for you: 1. Was the colonoscopy planned, or was there something that precipitated it? If it was a planned follow-up, I understand, but I wasn't sure if they'd give you one if your...
  7. J

    Low Dose Naltrexone (LDN) Support Group

    lsgs -- it took a looooooong time. I think it helped me, for sure, but the change was gradual. There was no immediate result for me, nor was there a point where it "kicked in" and I suddenly felt better all at once. Instead, I just felt incrementally better until one day I realized that I was...
  8. J

    LDN - Keep waiting?

    Hi Sarah -- this may not help, as I don't have any experience with biologics, but aren't they not necessarily mutually exclusive? I could be mistaken, but perhaps there have been folks who have stayed on LDN while adding a biologic. Tagging Jmrogers4 to see if she can add anything to this. As...
  9. J

    How long does it take to work?

    Yes, but moderately -- I was in an OK place to start.
  10. J

    How long does it take to work?

    For me personally, it worked reaaaaaaallllly gradually... I've been on LDN for about a year(??), but the change was so gradual that it was hard to tell when it "started working," exactly. I was doing OK before I started, but I wasn't 100%. Nowadays, most days I feel totally normal, even though...
  11. J

    Low Dose Naltrexone (LDN) Support Group

    Joshua -- yessir! Sending you a PM so as not to hijack the thread.
  12. J

    Low Dose Naltrexone (LDN) Support Group

    Taking it later in the evening should be fine -- or, it is for me, anyways. I think there's a window of time (basically at some point before heading off to bed) in which you should take LDN, so I'm under the impression that 11:30 should be fine. I usually take mine around 10-ish, and on the...
  13. J

    LDN overseas?

    Job, glad to hear it!! How many pills did you get for $60? LDN may help you, but be sure to give it time. I know you want to turn things around sooner rather than later, but keep in mind that the progress of LDN tends to be slow for many people (myself included). Keep us posted!!!
  14. J

    Low Dose Naltrexone (LDN) Support Group

    Hey there Adam, I wish I could offer you some advice on the dosage, but I feel like it varies depending on who you ask. I personally started out at 4.5mg and have never changed it since starting LDN, but I'm also probably heavier than the average user (I was 200lbs. when I started LDN at...
  15. J

    Crohn's 23 years old found out last year.

    Hey there Beauty, I just wanted to say hey and show some support. You can see what I'm taking in my signature, but treatment for Crohn's is going to vary widely from person to person. I realize that isn't much help, but you should remain optimistic that you'll find something that works well...
  16. J

    Low Dose Naltrexone (LDN) Support Group

    Hey there Christie! At first I had some fairly vivid dreams and my sleep was a little reference, but now it barely registers that I'm on it. No noticeable side-effects to speak of. I've heard some anecdotal "it-might-get-worse-before-it-gets-better" stories about LDN, but for me, I didn't...
  17. J

    LDN with Methotrexate and Anti TNFa drugs

    Sorry Crohn2357, I wish I could help but I'm not sure, as I haven't had firsthand experience with any biologics yet. However, I'm under the distinct impression that the main thing to watch out for is using LDN and opiate-type drugs at the same time -- this is considered to be a bad idea, as LDN...
  18. J

    Low Dose Naltrexone (LDN) Support Group

    Also, I was on 9mg for a week (then tapered down to 6mg, then 3mg). However, considering Grace's age (and her size), I would defer to a GI in terms of how much budesonide is appropriate.
  19. J

    Low Dose Naltrexone (LDN) Support Group

    I've done both, and to be honest, I don't think it had any effect on the LDN. I went on a short course of budesonide to get out of a mini-flare, and it seemed to do the trick, and I stayed on LDN the whole time. Hope this helps somewhat!
  20. J

    LDN and Appetite

    I'd suggest Orgain -- same idea as ensure, but it seems like there's much less junk in it, comparatively speaking at least. You can get them at grocery stores or places like Rite Aid -- not sure what you have for chain pharmacies down in Texas, but start there. I definitely drank Orgain when I...
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