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Youssef, In my experience, my appetite did gradually come back. That said, if you're getting worse and you haven't mentioned it to your doc, you might want to do so. I wouldn't want you to keep losing weight. Your appetite aside, what other symptoms have you been experiencing?

NGNG, I wish you the best of luck! I would agree with you regarding the Percocet -- you should probably wait. I have some on-hand for emergency situations, but I try to stay away from it in order to stay on the LDN and not cause any issues. (I'm fortunate in that I've only needed to resort to...

Lisa, forgive me if you mentioned this earlier, but what made you opt to start at 1mg?

If your guts are narrowing at the moment, I would suggest trying to supplement with some sort of liquid nutrition -- something like Ensure or Boost would work. I personally like Orgain, which you can get at Rite-Aid; it's a lot like the other supplement drinks, but no HFCS, less sweet, might be...

Annie, first off I'm sorry about what you're going through! It sounds like you're getting proper medical care, so things will be looking up soon, I'm sure of it. I just wanted to chime in and mention something about the capsule endoscopy: There is a pill that doctors can use (I think it's...

I've missed a couple here and there. I wouldn't take it during the day -- just wait until the following evening. Shouldn't make a huge difference.

Welcome aboard Claire, hope it works well for ya! Keep us posted! :D

Seconding what Clash said. Personally, I don't live on pain pills -- up until now, I've never actually had them on hand since I was first diagnosed. That said, if my stomach started killing me mid day, I'd probably take some if things got dire. If someone were taking painkillers routinely...

Right on badbelly, keep us posted! I'm currently on the LDN/Pentasa combo, and aside from a recent bump in the road, it seems to be working well. The changes were very gradual -- so gradual, in fact, that it sometimes seemed imperceptible -- but overall I think I'm in a better place now that...

Hi Jonathan -- I'm currently taking both simultaneously. I think my doctor appreciated the fact that I was willing to stay on a more "tried-and-true" medication like Pentasa, and as a result she was more willing to go along with my desire to try LDN.

Glad to hear someone else was/is pushing around at my age! Thanks for the advice Jacqui!

So, this is a mostly hypothetical question. After flaring again, I went to the GI and discussed pain management for the next time this happens (I get severe stomach pains, seemingly once every 3-4 months or so; it's pretty rare for it to get so bad, but when it does, it's excruciating). She...

Every once in a while might be OK, but if you start feeling better, don't go overboard on the Mickey D's, buddy. ;) You probably already know this, but keep in mind that it takes a bit for LDN to really make a difference. From my personal experience, I don't want to say "kick in" -- it's more...

Cool -- thanks everyone for chiming in. Well, I'm doing the quick-taper thing, so I'll keep you all updated on how this goes. 1 week on 9mg has passed, now I'm on day 2 of 6mg.

Totally. She was actually the one who suggested a quick taper, but she left it kind of vague -- saying "you know your body better than anyone." I have a follow-up in July as well, so I plan on keeping her posted.

Sweet. I'll try it myself. Thanks!!

Define quick: a few weeks? Days? I'm thinking about doing a week of each dose, but I don't know if that's wise.

Howdy folks, I know it's been mentioned here before, but has anyone here on LDN treated a flare with Entocort while staying on the LDN? I'm currently doing it now, just curious about others' experiences. Thanks in advance.

No experience with flagyl, personally, but I did have really good results using a short course of Xifaxan, which is also an antibiotic. It targeted bad bacteria (well, all bacteria, probably) in the gut, and it really seemed to help me -- I think that it helped the beginning of the end of my...

Job, I know this sounds kind of trite, but don't lose hope. Like you said, there is a chance that what you got was either not good LDN, or perhaps it wasn't mixed properly (what you did sounded right to me, but I wouldn't trust myself to compound my own LDN, personally). Not sure if you're...