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Lynda, So happy you've got this problem! (yeah, sounds weird, lol ) but i'm just glad you got approved, got the infusion under your belt, and now youre ready to home administer maintainence dosing I'm hoping you get as much relief/healing with this medication as i ( and many others ) have MLP...

i feel like somebody smarter than me should be replying here, and hopefully, they will be along shortly .... In the meantime, take a step back and reflect on the most important fact You're there for him, (like my wife is for me) Just knowing that he's got a solid support system in place on...

Sounds like real progress! :) Super cool your bosses are working with you as well! There's a lot of times it feels like one step forward and two back, but it's so cool when you can get a couple steps in the right direction You, and you alone did that by staying in the game and doing what you...

Hey, thanks for checking back in! :) yeah, the phantom poop thing, boy howdy do I know what you mean! nothing sucks more than that! I wish i had some words of wisdom for you there. I adjusted my diet (considerably!) and added a few supplements (primarily turmeric) and things laid way down...

Good to hear you're still in the game! This is just a tough condition, in a tough year, and for many of us, we feel pretty alone and isolated at times. ... people that have never been thru what we go thru on a daily basis will never "get" what it's like We're lucky to have this forum to act as...

How's things? Anything we can help with?

It's a cruel irony how crohns presents differently for everybody ... even the same person can have wild swings with no discernable reason Sounds like you're having a rough go of it ... also sounds like you're doing your best ... i;ve been there, a half a step from homeless and losing hope ...

I got a sharps container from my pharmacy

... this is me, everday! ... don't stress over it, just let it roll we're not english majors here, just do what you can and post it up, even if it's not "perfect" crohns is a cruel bitch and it impacts on many levels, (many of them unseen) we've all been where you're at, (most of us more...

So, yeah, here we go again :( Numbers even worse than the last time. ... did the same treatment, just a lil bleed an go Only, this time, i didn't tolerate it as well I'm cold all the time and just feel "off" (more than usual, lol) More concerning, my blood o2 went down to 83% and my heartrate...

You got this luck favors those who stay in the game and chance favors the prepared ... it may not look like it sometimes, but just the fact that you're still putting in work means things willl turn around. We've all had our tough patches, but, somehow, things always get better. Just keep...

Wow! Sorry to hear of your husbands many challenges. He's very blessed to have you on his team at home It is very overwhelming at times, but it sounds like you've got a good team to work with and they are up on the wheel getting labs and other testing done. You've come to the right place to...

Excellent information! The contrast agents mentioned above should be discussed to your satisfaction pre -procedure Diabetes or liver/kidney issues will require a very thorough risk/benefit analysis of the type of procedure performed and the contrast agents used Excellent point! I can tell...

K, Hope things are beginning to calm down for you. These are challenging times, and if that wasn't enough, making tough decisions / beginning a new therapy can really take a toll on your balance. Grandmother always used to say "the journey of a thousand miles begins with the first step" ...

Hospitals aren't fun places, but at least you're where you need to be to get this sorted. Hope you get good news and get things headed the right way.

... sorry to hear about the rough road you've been traveeling The good news is that you're here and you're posting. :) Please, feel free to start any threads you need to to, on any topics you need information on There's some really experienced and knowledgable folks here who can help you...

Thanks for starting this thread and posting this most excellent news! ... After reading your signature, I think your hard work, spirit had a "little" to do with your success ;) Congratulations!

Sorry to hear you are having this challenge, as you are one of my favorite posters on this forum and always have good advice for members. please elevate your concerns with your ibd clinic, and consider adding your pcp into the communication loop I learned the hard way how quickly skin things...

... going to try again to get some assistance from my hospital staff on nutrition. The last few attempts have been ... discouraging ... It's very unfortuante that "professionals" in many g.i. clinics just don't believe in folks working on their own on targeted nutrition and/or supplements to...

63, go back and read the original post it is about "sex", ... and a choice a member made (after much agonizing and thinking about it), and the results of that choice Following up on what happened had to have been very difficult for them, but follow up they did ... for all of us to learn from...