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So just after your op they did not put you on maintence meds because you did not have a diagnosis?

Elanor ...I am glad to year your scope showed only a couple of little spots..i recently followed your surgery posts and was so pleased when thinks turned out well, but the disturbed when you seemed to have problems a few years later. I have been referred for surgery - resection for 2 strictures...

JessPeper..glad to hear it was a fast a recovery from D as that. I am worried to loose it and worried at age 57 that might take very long time or never adjust....would hate to swap pain for such a limited life in terms of going out/places. Yes I have had 4 years of tending to Const not D...

DEmberton...thanks - yes - it just not seem to make any difference to the pain but seems to give permanent bowel urgency for 5 hours or more after each bowel movement. By the way did u loose your illeocal valve in your surgery and has that given you problems..they can't commit to saving...

Hi, something of a newbie here would appreciate comments from anyone with similar experiences/symptoms. I was diagnosed with 2 small intestine strictures 4 years ago and have been on Azathioprine and Movicol ever since. Have been in inflammatory remission for about a year but still...

I think a) genetic predisposition b) Naproxin for a bad back & C) stress loss of parents/ children leaving/ redundancy.

Does anyone know the statistics on remmision rates if you are already in remission pre surgery? ie I have had no inflammation for a year but need surgery due to pain and constipation from fibrotic strictures. presumably this gives me a better chance of long term remission compared to surgery...

DEmberton: well it is of course a balance between maintaining your remission and doing damage/ side effects. I must say as a 57 yr old diagnosed 4 years ago I think the first flare or two is the worst and you can hope for an easier time as he years go by so hopefully we all get meds reduced...

Don't panic - I think they have just changed the protocol in AZA right across the NHS- I too have had lots of reminders to get tests that I have just had. They probably got sued by someone that di dnot get checked often enough so thye have reduced the time between tests- I think form 6 months...

I am possibly close to crohn's surgery - been reffered but have previously had discectomy for badly slipped disc. I did not mourn at all for what they took out..never even thought about it ..was just so grateful to be rid of he terrible pain I had suffered for many many months.(years really). I...

the danger with not taking maintenece meds is you end up needing surgery for fibrotic strictures...just the situation i am in now. R

If you have no current strictures you could also try increasing fibre in the diet, this should help absorb fluid and slow things down.

thanks, Well I had an MRI a few weeks ago and they confirmed the strictures are fibrotic but when I asked about the new higher level of pain on the left side they just said it was hard to tell - patients complain of pains all over - I'm just concerned - don't know how much they check around...

Melissah90...did this resolve? I guessed maybe it was a bit of post op swelling at the join...in which case it would go away in time. I know when I had a disc removed from my back they warned the operation takes the pain away immediately and then a week or so later if comes back for a week...

Was diagnosed with 2 strictures in illium 4 years ago - been managing on azathioprine and movicol ( stool softner) which finally got me into remission a year ago. Feacal calproctin only 111 and nothing in the bloods. 5 months ago went back to a desk job after a year and immedeatly began to...

Thanks for posting this... as someone with two strictures in small bowel just north of the valve and facing resection soon this is very encouraging. As my inflamtion levels are very low thanks to AZATHIOPRINE and desease always been limited to illeocal area the chances sound good for much...

I am waiting for my referral to surgeon for possible resection of 2 fibrotic strictures in illium- due to pain despite being inflamtion free for over a year. In the mean time I am on Azathioprine ( which seems to be working) and Movicol to help ease the constipation - which I guess is due to...

Thanks for the answers SCIPIO...yes the really unfortunate thing is that my worst symptom in not the pain from the food going through the strictures - which is bad enough - but that if I used Movicol to keep things moving -as directed by doctors - it gives me strong pains for at least half a...

Yes I think it will be back on the azathioprine within 1 month.

Really pleased to hear it all worked so well for you at least for 4 or 5 years.