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Hi Scipio, my little penguin, thank you for your replies, maybe it’s just me ageing, I’m in denial :) Any noticeable side effects that have crept up over the years?

Hi all, just wondering if any of you who are on Stelara have experienced increased memory loss after being on it for awhile? Thanks in advance

Thank you again for your help. I spoke to my GI last night and he’s sending me to a rheumatologist soon. I’m hoping methotrexate also helps my issues. Thanks again

Hi, did the methotrexate help your sons joint, tendons and muscle symptoms?

Thank you for that feedback. I’ll speak to my Gastroenterologist and get him to send me to a rheumatologist for another opinion

Hi Scipio thanks for your reply. Unfortunately maybe it’s just unique to me. Thanks all the same

Hi all, just a quick question, I was on Stelara every two months then moved to monthly Stelara shots for the last two years. Since moving to monthly I’ve slowly developed joint and muscle pains that I’ve never had before. The pain is in my lower back, feet and a little in my hands. MRI’s show...

When I was on Vedo I was never been given these pre infusions but maybe where you had the infusion they have different protocols. Hope the Vedo is helping you.

Hi Ron My ileo valve has been removed in my previous surgery so I can’t help much but I think the best think to do is phone your GI and ask him if a ileo valve lock is actually a thing that can happen? I’ve never heard of it. Hope u feel better soon, Crohn’s is such a crappy and confusing disease!

Hi ronroush Thanks for your reply. I’m guessing I’m being a bit impatient and should give myself a few more weeks before I panic. It’s just scary thinking I’ve endured the pain of the surgery just to have not have fixed the original problem. But time will tell I guess

Hi Justanothercp Thanks for your reply. I take Stelara every 8 weeks. I think your surgeon is probably right. Hopefully I’ll be better in a few weeks but up to now the symptoms are as intense as before my surgery which is why I’m a bit worried.

Hi, Writing to all of you who have had previous resections. I have just had my 3rd bowel operation around 4 weeks ago. I had 6 strictureplasties and a resection in the operation which took 5 hours in total to perform- all in small bowel. I really couldn’t eat anything but soups for the...

Thank you Bufford [emoji1317]

Thank you so much Scottsma I really appreciate your well wishes. [emoji1317]

Bufford You’ve also been through so much surgery too! I hate surgery with a passion! I’m currently writing back to you fro a hospital bed recovering slowly from my current op. Unfortunately this time around the op was complicated, I got an infection around the resection site so healing has...

I hope Entyvio works incredibly for you, take care Ron

Hi Ron Thanks for your reply, what you’ve been through really sucks! I hope you have long lasting remission from this crappy disease !

Hi all In 2005 I had my first bowel resection removing 20cm large bowel, 20cm small bowel. In 2012 I had my second bowel resection in which the surgeon removed 10cm small bowel and 3 strictureplasties Now I sit in hospital I have just had my 3rd bowel resection Surgery accompanied with 7...

Best of luck hope it works better this time around

Hi guys Just wondering if any of you that have switched to Stelara every 4 weeks has seen an improvement in their symptoms? I have been on Stelara for 6 months and a recent colonoscopy showed that I still have lots of ulcerations so my doctor wants to move me to Stelara every 4 weeks. Just...