Search results

I believe she is taking a combination of oral antibiotics similar/the same as what is offered in the Redhill Map phase 3 trial. The anti-map Vaccine trial in Oxford in in phase 1, which means it is being tested on healthy adults with no illnesses and no Crohn's/IBD to see if it is first safe...

Hi Soph, Really pleased you got an appointment at last! I would focus on this: - Even if the MRI is normal, the colonoscopy showed your bowel has not healed and that is the most important point. - The goal of treating Crohn's disease is full mucosal healing. That has to be your GIs...

The best thing you can do is get a diagnosis. Only then do you know exactly what is going on and how best to proceed with treating it. Different treatments work for different diseases.

What testing have they got planned and when?

You cannot make assumptions with this disease. Are there plans for you to have testing?

Please get properly diagnosed. You cannot just assume you have IBD because it "feels" like IBD. IBD feels different to everyone. Food poisoning can cause raised calproctectin levels. You need to be properly tested for IBD before making all these assumptions and changes.

Everyone is different. Entocort works by targeting inflammation in the terminal ileum and colon. Do you know if you have inflammation there?

Have you been diagnosed with Crohn's? Were your b12 and anemia levels normal? If so why do you think this was false?

There's also entyvio and cimzia.

https://ibdnewstoday.com/2017/05/04/protagonist-to-present-preclinical-findings-on-ptg-200-for-crohns-disease-at-conference/

Yes you can. Other tests that may reveal something include an MRI with contrast of the small bowel, an upper endoscopy and a pill cam.

Oh right :-/ I have left a message with the nurses and said I cannot get back to take my test until Tuesday so let me know if it is safe or unsafe for me to do that. Will see what they say.

Thanks for your info - that is certainly a weight off my mind. Started thinking maybe I had cancer and all sorts of crazy things! I know my dose is low - It was a battle to get it upped to 75mg in March - prior to that I had been on 50mg for a YEAR!! I am just shy of 8 stone and 5 foot 5. My...

Hello, I am on azathioprine (50mg since April 2016 and upped to 75mg in March 2017). I get my bloods checked every few weeks, last time I got them checked on 11th April. I have received two calls this week now from the IBD nurse asking me how long I've been on my azathioprine, when did I start...

Classic GP doctors in the UK. Definitely go back straight away if things don't resolve in a few days

Did you have an endoscopy to diagnose that?

I know your GI said you don't have Crohn's after the pill cam but my advice to you would be to keep an open mind. Misdiagnosis of Crohn's is common even for experts when it is staring them in the face. I hope you don't have Crohn's but an ileal ulcer and inflammation makes it a real possibility.

I certainly did not experience anything like this. I know 4 weeks after my surgery I was running for a train and this caused me to feel some discomfort but was fine again pretty quickly. I remember feeling very well by 6 weeks. I would ask to get scanned. I am also wondering about hernia

Narrowings and problems with the small bowel can cause pain in places you might not expect. I used to get horrifically painful cramps just below my ribcage in the centre when I had severe inflammation in my terminal ileum. You sound like your quality of life is poor and there is no possible...

Yes exactly, you explain that much better than me :-)